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10-01-2006, 06:15 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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2 year anniversary today
Yes that's right, it was 2 years ago today that I had my first mammo/ultrasound that was "highly suspicious of malignancy" and Oct 4th when I heard the words "you have cancer". I was told even before my biopsy, it was that obvious. I do feel a little better, making it to the 2-year mark with NO mets or anything, even being staged at 3a so it IS do-able. Now next year when I stop the Herceptin I will be a bsaket case I know. But I know with my type of very aggressive cancer, the first 2 years are the most vulnerable. Herceptin ROCKS!!!
Thank you all for all your help, knowledge and support - without this site I wouldn't know half of what I know about what I'm dealing with. Thank you so much Joe and Christine for everything you do, you truly are making a difference in ALL our lives!
Jen - TWO YEAR (and counting) SURVIVOR - YEAH!!!!!
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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10-01-2006, 06:33 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 312
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Happy second--and many more!
Janet
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10-01-2006, 06:51 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Congratulations to you! How awesome! Life is good, isn't it!!!!!!!!!!
We all need to MAKE IT GREAT! Life is short - but sweet!
marejo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-01-2006, 07:24 PM
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#4
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Jen, congrat's. this was my 3 year anniversary. I think we all have alot to be thankful for
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10-01-2006, 08:29 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Jen, congrats! Lately after 1 1/2 years my mood has changed and I'm happier and feeling so much hope. Many more anniversaries to you! BB
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10-01-2006, 08:30 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Jen,
Happy 2 year anniversary!! I wish you many many more!!
Lexi
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10-01-2006, 08:59 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Congratulations!
And you just reminded ME...today is my 2 year anniversary of my very first chemo. Funny the things we celebrate! But each such milestone is another reminder how precious each day is and how far we have come.
Next year when you finish herceptin you may be a basket case, but you will also have that much more time behind you and even more before you!
Take care
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-02-2006, 01:07 AM
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#8
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Congratulations Jennifer! Many years to come yet
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-02-2006, 04:04 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Jen
CONGRATULATIONS AND MAY YOU HAVE MANY MANY MORE ANNIVERSARIES TO CELEBRATE!!!!!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-02-2006, 04:28 AM
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#10
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Congrats Jen
On your 2nd year and I just know that you will see many more to come your way.
Take care
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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10-02-2006, 05:06 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Jen;
Congratulations!! I agree that these first two years are very significant and pray you have many, many more NED years in the future.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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10-02-2006, 06:08 AM
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#12
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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All the very best ... . and then some. MJO
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10-02-2006, 09:42 AM
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#13
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Senior Member
Join Date: Feb 2006
Posts: 43
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Jen,
Just wanted to say Congrats to you. You were one of the first to reach out to me in my age group, and your support and sharing helped me more than you will ever know. I was so grateful to know I was not the only person with small kids going through this.
I am also happy to hear that you are feeling so well emotionally 2 years out. I have had lots of ups and downs and feel like I am never going to get an emotional break from the death senetence I feel like I was given. I have heard 2 years is a big step. I have 10 more months to go!!
Thanks for everything and congrats to you!
Natalie
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10-02-2006, 10:33 AM
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#14
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Senior Member
Join Date: Jul 2006
Posts: 146
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2 yr anniversary
Dear Jen,
Congrats on your 2 yr anny. I will be so glad to reach that milestone. I had BC 10 yrs ago, now I have Her2 Metastatic Grade IV, and hope I get to the point you are now. Am recieving Herceptin and Aridia. I have a CT scheduled for next week, am very nervous of the outcome. After I was diag with BC in April, a bone scan revealed something on spine, then had MRI that determined I had a malignant tumor on spine which had to be dealt with first, I could not lie on my back. Hopefully everything will be okay.
Stay healthy and keep me informed of your progress.
ginkott1@aol.com |
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10-02-2006, 11:01 AM
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#15
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Happy 2nd. Here's wishing you many many more!
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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10-02-2006, 03:10 PM
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#16
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Congratulations! It's so great to reach each milestone!
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10-04-2006, 04:30 PM
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#17
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Senior Member
Join Date: Jul 2006
Posts: 146
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2 yr anniversary
Dear Jen,
Congrats! I'll be so glad when I get to that mark. I had BC 10 yrs ago and this time it's much more aggressive. I've only had 5 Herceptin treatments so I have a long way to go. Plus I had a tumor on spine that changed it to Metastatic Grace IV, I go for a CT on Fri to see if spine is clear after 18 radiation treatments, how liver and lungs look. Am very nervous as I'm having pain again in region of back that I had tumor. I hope it's nothing but muscle strain. This web site is wonderful for communicating with others who are understanding of what we're having to endure.
Keep in touch and let me know how you are progressing.
hugs,
ginkott1@aol.com |
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10-04-2006, 05:19 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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Thank you all for your good wishes - this site is the best! I hope everyone else can get great scan results this week too, and we can all score one against cancer!
{{ Hugs for all }}
Jen
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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10-05-2006, 08:48 AM
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#19
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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congrats and wishing you many many more disease free years.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-05-2006, 10:34 AM
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#20
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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wonderful news!!!
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