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06-20-2006, 04:29 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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June 20 - madubois63
I received my pathology report on yesterday's bone marrow biopsy. One round of chemo got the leukemia!!!!! I will get to go home when my counts reach a certain range (I am way off right now). I could be here in the hospital a few more weeks (hopefully less), but I am on the mend. The search for a donor will start soon. I will get to go home for a month, then I have to come back and do another round of chemo and stay for a few weeks again (ugh). Then when a donor is found, I will have to do one more round of chemo prior to the transplant. There are many steps to this whole transplant thing and your prayers are certainly helping getting me through. I cannot thank you enough.
hugs and kisses...
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
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06-20-2006, 04:43 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Great News!!!!
Yipee! Yipee! Yipee! This is such great news. I hope your counts bounce back quickly and you can go home soon. It sounds as if you are going to beat this. Now that doner needs to be found.
Best wishes and thanks again for posting.
Barbara H.
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06-20-2006, 04:55 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 161
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Best wishes on your donor search and get well soon.
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06-20-2006, 05:04 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Maryann;
I am so happy to hear your good news!!! Going home will be so sweet. When will you know about the bone marrow transplant donor?
Cathy
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06-20-2006, 05:06 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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YEAH!!!!!!!!!!!! I could not be any happier for you!!!! -kim
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06-20-2006, 05:16 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Glad that you will soon be able to go home. My son had leukemia (AML) and I know what a hard battle it is. My prayers and with you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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06-20-2006, 05:29 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Maryann,
What wonderful news!!
Love and hugs,
Karen
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06-20-2006, 05:42 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Maryanne -
Your positive news just keeps coming - hope your new doc now has a better idea of just WHO he is dealing with. A fierce fighter who will not take any setbacks lying down.
Love to hear that these steps in the process are moving along. Now we have to concentrate on those counts!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-20-2006, 05:42 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Let the GOOD news continue!!!
Prayers will continue Maryann. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-20-2006, 05:47 PM
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#10
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Senior Member
Join Date: Dec 2005
Posts: 274
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Hi Maryanne,
All good thoughts and many prayers are with you. God Bless.
Sincerely,
Liz J.
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06-20-2006, 07:16 PM
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#11
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Senior Member
Join Date: Nov 2004
Location: .
Posts: 87
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Bravo Maryann,
I have been reading your lively posts and imaging you fighting the hell out of this thing. You deserve some good news. Praying for you to find a donor FAST.
Anne
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06-20-2006, 07:33 PM
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#12
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Maryanne
To no surprise you are kicking butts with this new battle...can't wait till I see your post, I get to go home.
Love and Prayers
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-20-2006, 08:00 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Whoo Hoo Mary anne!
Soon you will be dancin in the raindrops with those beautiful children of yours! What great news!
Love Kim from CT
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06-20-2006, 08:19 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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So soooooooooo happy for you!
Dear Maryann,
So happy to hear the news. I'm waiting to celebrate with you and your family the end of this non-sense. LiveStrong Maryann for all of us.
Hugs and kisses,
Your admirer.
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06-20-2006, 09:00 PM
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#15
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Incredible! Wonder Woman does it again! You get well now, and I'll be keeping you in my thoughts and prayers that a donor is found soon.
<3 Lolly
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06-20-2006, 09:45 PM
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#16
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Oh Maryann I am so happy for you. It will be over before you know it. Stay strong, which it is obvious you are...sherryg683
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06-20-2006, 11:38 PM
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#17
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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You went and did it again MaryAnn. The tears are flowing again...I can't see to type. You just AMAZE me...a REAL INSPIRATION and then some. I hope you know how much you help so many of us women fighting this battle. I can't tell you how happy I am for you. You go girl!!!!!
I know you have much ahead of you still...but you are one tough cookie. Some of the worse has to be just being stuck in the hospital. Ugh! I just hate that...everyone wants to be home. But you WILL get there. This I know!  I am so glad you get to have a break and go home for a month..that will be so nice for you and your family. Gives you time to re-group.
Thanks so much for keeping us updated. I was SO HAPPY to read your post. Made my day. There are just no words to express just how excited I am for you. Your just awesome...nothing slows you down or gets in your way. I wonder if your doctor has a better idea now of who he is dealing with. lol I bet you are blowing his mind by now.
I will be looking forward to your post. I am sending you warm & healing thoughts, and saying so many prayers for you.
Hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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06-21-2006, 04:29 AM
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#18
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Senior Member
Join Date: Sep 2005
Posts: 49
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Mary Ann,
Such wonderful news! You remain in our prayers.
Hugs and blessings to you.
Petesmom
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06-21-2006, 07:00 AM
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#19
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Maryann,
What wonderful news! So very very happy for you!
Hugs,
Jean
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06-21-2006, 07:04 AM
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#20
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I know there is nothing you can't conquer with your strength and conviction. You are one tough cookie and a good example to all. Good luck with finding a donor and keep up the faith.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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