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Old 10-13-2013, 03:18 PM   #1
StephN
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Click & RAISE FUNDS for BC nonprofits

Everyone can participate and help raise funds for groups that support those with metastatic breast cancer.

As a follow-up to our 2013 program, Living Beyond Breast Cancer, Metastatic Breast Cancer Network and MetaVivor are partnering with Genentech to honor the 5th Anniversary of Metastatic Breast Cancer Awareness Day by launching a new interactive video wall to gather sentiments from the MBC community. Faces of MBC is asking participants to share through photos, words of wisdom and videos accomplishments within the MBC Community over the last 5 years and what they hope to see accomplished in the next five years. In addition, Genentech is donating $10 for each new upload and $1 for every unique page visit to nonprofits that support MBC initiatives (up to $20,000).




Below is some sample promotional language about our MBCA Day plans that would be great if you would be willing to post via Facebook or Twitter.






Suggested Tweets

Oct. 13

Today is #metastatic #breastcancer Awareness Day. View inspiring stories on #MBCProgress to raise $1 for MBC initiatives: www.facesofmbc.org



Week of Oct. 14

Share your thoughts on #MBCProgress on the Faces of MBC video wall. For each upload Genentech will donate $10 to MBC initiatives.www.facesofmbc.org



Suggested Facebook Posts

Oct. 13

Today is the 5th Anniversary of Metastatic Breast Cancer Awareness Day. Visit www.facesofmbc.org to share your thoughts on successes in the MBC community in the last 5 years and what you hope to see achieved in next 5 years. Faces of MBC will donate $10 for each new upload and $1 per unique view to nonprofits that support MBC initiatives (up to $20,000).



Week of Oct. 14

Help celebrate successes and push for future progress for people living with metastatic breast cancer. Share your MBC story on the #MBCProgress interactive video wall. Upload your story to www.FacesofMBC.org to raise $10 for MBC initiatives and share with your friends to raise $1 per unique view.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 10-15-2013, 06:01 AM   #2
NEDenise
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Re: Click & RAISE FUNDS for BC nonprofits

Steph
I'm sure it's just my befuddled brain...
but I don't get how to make any of these fundraisers to work.
??? Denise
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Old 10-15-2013, 07:22 AM   #3
Jackie07
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Re: Click & RAISE FUNDS for BC nonprofits

Denise,

Click on the red links and then click on 'Get Started' to the right of 'Everyone can make a difference!'

www.facesofmbc.org
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Last edited by Jackie07; 10-15-2013 at 07:27 AM..
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Old 10-30-2013, 05:21 AM   #4
sarah
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Re: Click & RAISE FUNDS for BC nonprofits

thanks for posting this.
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Old 10-30-2013, 02:36 PM   #5
'lizbeth
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Re: Click & RAISE FUNDS for BC nonprofits

I think I've clicked $11 dollars worth!
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Old 11-07-2013, 11:41 PM   #6
Imran520
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Re: Click & RAISE FUNDS for BC nonprofits

It is very good to funding the non profit organizations.
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Old 08-17-2014, 07:58 PM   #7
Adriana Mangus
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Re: Click & RAISE FUNDS for BC nonprofits

thank you for posting.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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