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02-09-2012, 10:14 AM
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#1
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Senior Member
Join Date: Jan 2010
Posts: 170
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Feeedback please
Hello to all,
I have been trying to figure out why I am wheezing and have been since the middle of Dec. I told my onc. and we took a chest x-ray that came back clear. He told me to call primary care doctor. I did and she put me on Augmentin for 10 days. Actually, cleared up a sinsus infection that I had complained about, and was told to use Claritin. Wheezing continued.
I thought to myself, maybe it is my heart. Been on Herceptin for 24 months now and had not had an echo for 4 months. Had the echo and met with cardiologist. Echo great-64% but he thought wheezing sounded like asthma. Ok.. I spend time on internet and see that acid reflux and asthma seem to go hand in hand much of the time. Cardiologist refers me to pulmonary doctor who does breathing tests and says it "maybe" asthma, gives me an inhaler to use 2 times a day and one for before I go to the gym. Been using it for a week now, still wheezing.
I also saw a gastroenterologist and had and endoscopy done on Tues. and now waiting for biopsies to come back.
She gave me a prescription for a acid pump inhibitor and I just started that.
My annual brain MRI-that I insisted on- came back clear so that was very heartening.
So, now I guess I have to insist that I get a PET scan. Have not had one in 5 months am wondering why my onc. does not want to order one for me.
So, if anyone has any idea what may be going on, please let me know.
I feel like I am the only one driving this trying to find out why I am wheezing.
Frustrating to say the least.
Best wishes to all and please know you all give me strength and courage each and every day when I read your posts.
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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02-09-2012, 12:37 PM
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#2
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Senior Member
Join Date: May 2011
Posts: 137
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Re: Feeedback please
Maybe? I had much the same symptoms- it was a tightening that I felt in my chest and lungs early January, and when I called my onc he had me go to the ER. They admitted me and ran tests ruling out all of the things you've mentioned. Heart, lungs, etc. all were fine. I also went home on a proton pump inhibitor. BUT still felt the tightness and also felt like an inhaler might do the trick. But when I mentioned it to my onc the next week, he suggested trying Carafate- its for ulcers and damaged esophagus from acid reflux. It took a full two week course of it, but slowly I healed and have to say the tightening stopped and I could breathe fully again. So I guess its worth me mentioning to you anyway. Hope you get relief soon!!
__________________
3-16-11 dx IDC 4.4 cm tumor, right breast,HER-2 neu 3+++, Stage III
3-25-11 PET scan shows 3 mets to liver and 1 to spine, Stage IV
4-12-11 start clinical trial of TDM1 infusion 1x every 3 weeks.
6-14-11 CT scan after 3 cycles shows NO liver spots, reduced spinal met from 18mm to 13mm and right breast mass from 4.4 to 4.2 cm.
8-12-11 Mastectomy rt. breast.
10-11 scans reflect stable cancer
12-11 MRI reveals area of concern in brain, CT scan reveals 3mm spot on lung. Watch and wait and rescan in a few weeks. Round 13 TDM1 complete.
2-21-12 Scans reveal progression in lungs with 4 new small mets. Officially off tdm1. Start halaven and radiation for single brain met, 1 spot in spine.
3-13 stereotactic radiosurgery for single brain met.
5-31-12 Halaven stopped due to low blood counts. Start tamoxifen and cont. Herceptin 1x3 weeks.
7-11-12- brain mri shows shrinking brain met and no new lesions. Cont. Herceptin and Tamoxifen
10-2-12 Stable tumor markers. Continue Herceptin and Tamoxifen
4-9-13 progression in lymph node under arm and new lung spots. Stop Tamoxifen. Add Xeloda to Herceptin.
6-10-13 Stereotactic radiosurgery to two new brain mets. Stop Xeloda due to lung mets progression. begin Tykerb 7-2-13.
10-29-13 Begin radiation to my lungs and one lymph node under my arm. Stop Tykerb until completion and then recommence.
1-31-14 Progression in lungs. Oophorectomy performed.
2-18-14 Begin Arimidex and continue Herceptin
7-7-15 progression with spots on colon, in pelvic region, and in lungs. Begin Taxotere, Perjeta and Herceptin.
11-15 Switch to weekly Taxol, and continue with Perjeta and Herceptin.
12-23-16 PET scan shows Complete Response with no new spots. Continue on with TPH indefinitely.
3-16-16 Still no evidence of disease, break from Taxol. Continue on with Perjeta and Herceptin.
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02-09-2012, 02:00 PM
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#3
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: Feeedback please
Do you have allergies?
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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02-10-2012, 08:31 AM
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#4
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Senior Member
Join Date: Jan 2010
Posts: 170
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Re: Feeedback please
Hi Bonnie,
No, I don't have any allergies that I know of. I am not sure how long it normally takes for the inhalers to become effective, but I'm still wheezing after 7 days of treatment.
If I am still wheezing on Mon. I think I will call pulmonary dr and see what is up.
Just wish it didn't affect my energy level so much.
Thanks for posting back,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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02-10-2012, 10:27 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Feeedback please
Do you have a crushing pain in your chest? I had pain in the chest and had a fibroid in the lung from radiation and apparently had had a heart attack without knowing it. It had nothing to do with Herceptin. My echo and EKG were normal. So if you have any chest pain, see a cardiologist and maybe start taking baby aspirin with dinner. Not realizing my symptoms, I may have damage my heart more than necessary. not sure yours is similar but be safe and sure, I wish I had been.
sarah
__________________
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