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06-03-2014, 08:29 PM
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#1
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Member
Join Date: Jun 2014
Posts: 16
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severe pain in lower back, very worried
Hello ladies,
I started on tdm1/kadcycla 3 months ago. In the last few months I have had twinges of pain in my lower back which have been uncomfortable but manageable. In the last few days the pain has become very severe. I am unable to get up or sit down without help and morphine is not taking the pain away. I am very worried that this could be something sinister. Can you offer me any advice please?
Thanks for reading x,
__________________
January 2012 - itchy nipple on right breast
February 2012 - lump appeared in right breast
March 2012 - diagnosed with breast cancer in right breast, mastectomy on right breast found that 12 of 13 lymp nodes in armpit were positive. Her2+ ER -
May 2012 - fec t chemotherapy
September 2012 - herceptin began and fec t ended
November 2012 - radiotherapy to breast, neck and armpit
March 2013 - healthy left breast removed and reconstruction on both breasts
May 2013 - lump appeared on neck at right side, surgery removed two nodes and one showed cancer her2+ er Started vinorelbine chemotherapy along with herceptin
July 2013 - cerebral venous sinus thrombosis diagnosed, hospitalised for one month
August 2013 - continued with vinorelbine chemotherapy and herceptin
November 2013 - vinorelbine chemotherapy ended and continued with herceptin on its own
February 2014 - lump appeared in neck in same area and tdm1/kadcycla chemotherapy began
June 2014 - have received 3 x tdm1/kadcycla and await body scan this week
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06-04-2014, 08:17 AM
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#2
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Senior Member
Join Date: Mar 2011
Posts: 70
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Re: severe pain in lower back, very worried
I see you are having a body scan. Maybe they could move up your appointment since you are in so much pain. It could be a back problem (disc) or a kidney stone. Hope you get relief soon. Sending prayers and hugs.
__________________
12/2006 right lumpectomy - HER2-Stage 1
A/C x 4
Radiation
Herceptin - one year
6/2010 - Stage 4 - lung and skin mets
Lung resection
TCH x 6
12/2010 - right mastectomy
On Herceptin
Scans every six months
11/2013 - stable continue to watch spot on lung
Continue on Herceptin
6/2016 - 6 years Stage 4 - stable - continue Herceptin
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06-04-2014, 10:19 AM
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#3
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: severe pain in lower back, very worried
I agree that you should get scan and diagnosis as soon as possible. Wondering is the worst!
But remember that just because we have cancer doesn't mean we are immune from other "regular" ailments! As Diane said, it could be any number of benign things. So don't borrow trouble yet!
Keep the faith
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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06-04-2014, 10:29 AM
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#4
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Senior Member
Join Date: Apr 2011
Posts: 403
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Re: severe pain in lower back, very worried
I have been in severe back pain since last Saturday. Saw my doc yesterday he said its new so we'll keep an eye on it. If you are worried about bone mets, this is what my nurse told me -bones mets are usually not symmetric, meaning if on both sides then less likely. You can also check the calcium level in your blood. Higher than normal level can raise some concern.
I hope nothing is serious! A scan is the best way to tell.
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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06-04-2014, 01:05 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: severe pain in lower back, very worried
I agree to getting the scan but remember a bone scan tends to show everything, even arthritis or old injuries so an MRI may be better, I'd let your Onc know the pain you're in so he can decide, chances are its muscular but best to check for peace of mind and praying for nothing sinister, please keep us posted.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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06-05-2014, 02:47 AM
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#6
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: severe pain in lower back, very worried
Another thought: have you ever had severe backpain, like lumbago, before? Does it feel similar or is it different? Because you describe exactly how my lumbago starts. Anyway, I'd contact my medical team and ask for evaluation asap. You've been through enough. You should not need to worry unnecessarily. I hope they rule out bonemets.
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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