***What was your date of dx, stage, treatment and current status...???***

[Mary Jo]

Just giving an update on "me"...........I am now a 3 year NED survivor.

Is so thankful...

Mary Jo

[Diana1993]

Thank you for the updates. We all need to hear these stats. I'm still a work in progress but still ticking after 15 years, Aug. 1993.
Hugs
Diana

diagnosed 5/02
Stage 3A
6 cm 5/12 nodes
ER/PR +
Her2+
left mastectomy 5/02

6 rounds AC
Arimidex
28 radiation treatments

Sternal Mets 2/04
Carbo/Taxol
Herceptin weekly X52
Aeridia every 2 weeks (still)
Cyberknife Radiation X3
Femara

Started Herceptin every 2 weeks March 2005 (still)

Mets to T1 verterbrae 5/08
16 radiation treatments
Added Flovesant (hormone inhibitor) IM Qmonth

Having scar revision and breast reduction for symmetry on remaining breast Sept 08

Taking it one day at a time...
Cyndy

[gin-tx]

Dear Rhonda,

I tried to reply to your inquiry but couldn't get it to work. I have had bc twice, once in 95, had radiation only, then diag again in 2006, agressive Stage IV metastatic as it had spread to bones. I'm responding to treatment so far, had 18 rads on spine which was very hard on me as it affected digestion, esyphogus, etc. Then the onc started Herceptin every 3 weeks which will be on forever. If I stop treatment he said the cancer will definitely come back. By way had partial mastectomy in 06. I also get Aredia every other treatment. It is to strengthen bones which were weakened from the radiation. I know at some point the cancer will come back but am getting discouraged. After two yrs and people ask when will I be finished. The answer is Never! Hope you are doing well, keep me informed of your progress and how you are getting along. I still work part time as that is all onc will let me work, keep benefits thank goodness as disability has run out so am using vac time that I had built up for treatment and dr appts.

ginkott1@aol.com

[Melissa]

approx 2 1/2 yrs out

Before I was dx I had a mammo the month before but it was clear (mammo was performed at same place every yr, for three yrs.) I found the lump myself, had pain in area of lump. I too had a supraclavicular node light up on scan and had the extra rad boost to clavicuar area on left side. Still have issues with arm, radiated area and arimidex BUT these are minor compared to others. I always hold in my heart others struggling w/ disease.

[lexigirl]

I had my mod. rad. mast. 8/30/2005 on my r breast. IBC, stage IIIB. I had 4 A/C, 4 Taxol and herceptin for one year. 5 weeks of rads also, a bolus used every other tx. I am three years out and feeling good.

I am so grateful that herceptin has helped so many of us manage this disease and for some possibly be the cure.

Hugs for everybody!

Lexi

[notamrnpsn]

I know this is the wrong place to ask this, but I know you are all very smart . I had a masc. 3 years ago, the 2 months ago the second one. They say no blood draws or BP if you had nodes removed. I do have a port, but where do they take the BP. Thanks, Jeanette

[hutchibk]

They can put the cuff on your leg to take BP. That's where they put it on me in the hospital. I only had a right side mastectomy, so I have BP taken on my left arm.