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01-21-2007, 05:26 PM
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#1
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Senior Member
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
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Insurance won't let me get refills
Is anyone else on Emends? My onc gave me this to take on the first 3 days of chemo. I take one an hour before treatment and then one each morning for the 2 days after. It is for nausea and vomitting. I am having me second AC treatment tomorrow so went to get my refill today (comes in a 3 pill packet) and was told insurance would only allow one fill every 21 days. I have treatment every 14. They don't care and since it is Sunday could not talk to anyone at oncs office. Regular price is $325. So now I'm worried that I will be sick all week. They still give me drugs through port before I start but how different will it be with out this drug? Any suggestions?
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
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01-21-2007, 06:12 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Kriss,
As if chemo wasn't sucky enough - to have bureaucracy get in the way just adds insult to injury. I'd get on the horn first thing in the morning with your insurance, maybe have your oncs office call too and see if they can get this decision reversed. I was denied over a certain number of something (Zofran I think) without a special note from the doctor. Maybe call your oncs office first and see what they can do on their end.
Good luck tommorrow
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-21-2007, 06:53 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Kriss,
You need that med (Emends) I took that during my chemo treatment also.
Can't imagine not having it....yes it will make a major difference. That is
a great med for nausea control. I had something similiar occur - first thing
call your insurance carrier and ask for manager in charge to clear the denial.
I don't know if your onc. will give you that med if the insurance does not
supply it since it is so exspensive. Do not take no for an answer when you speak with your insurance and ask for the very top people. The script
already calls for a 14 day renewal so they will have to recognize that your
chemo schedule is evey 2 wks. This is so unnecessary and no one should
have to deal with this.
Good Luck and let us know how you make out.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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01-21-2007, 06:58 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Absolutely ridiculous. As someone else stated, as if chemo isn't bad enough but then to add insult to injury and have to face all the red tape. It really makes me sick. As everyone else stated, call your insurance company and fight it tooth and nail.
Why can't that part of illness be easier? So so sad for people to have to deal with insurance company stuff a long with not feeling well.
My heart goes out to you and pray pray pray that your insurance company reverses their decision.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-21-2007, 07:43 PM
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#5
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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So sorry you have to deal with this. I did take Emend also and it worked like a charm along with compazene and ativan as Rx for the first 3-4 days. You need to call the insurance and speak to the highest up person you can talk to there and also have your onc write a narrative, (you can write one too), stating the reason you need it in 14 days vs 21 days. I sure hope this gets resolved before your next treatment. I had minimal nausea thanks to the above drug combinations. I am praying for you that it all works out.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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01-21-2007, 08:13 PM
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#6
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Member
Join Date: Sep 2006
Location: Rochester Hills, Michigan
Posts: 6
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I too was treated with Emend when I was on an every three week cycle of A/C. it worked great for me too. i found the three week cycle allowed me to recover from the A/C and I had a few days of feeling OK before my next treatment.
Good luck with your insurance.
__________________
pel50
DX 3/5/2006, age 56
Male Breast Cancer
Mastectomy, left breast
Stage 1, 1.5 cm tumor
Node negative, 7 nodes removed
ER+, PR+, HER2+, FISH = 2.5
4 rounds of A/C, completed 07/2006
12 rounds of Taxol complete 11/2006
52 rounds of Herceptin completed 11/2007
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01-23-2007, 03:53 PM
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#7
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Hi Kriss,
I was also on Emend.......thank goodness!! Anyway, I met some other women during my chemo infusions whose insurance would not pay for the drug, so the onc nurses always had some from the drug reps on hand, just in case. Check with your nurses............I bet they will have it for you.
Good luck!
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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