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01-28-2008, 12:05 PM
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#1
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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~Wennydog & Pat~Need All Of Our Prayers Right Now..
Without getting into too many details I need to make a prayer request for our Dear Friends Pat & Wennydog. As you all know the doctor's gave Pat 1-2 months to live and she is slowly failing. Wennydog (Donna) is such a miraculous caregiver; hanging IV's, administering medications, helping Pat up and around, scooping ice cream! Donna is an extraordinary woman who blesses me with inspiration each day. By just loving someone and engaging on their journey has taught me life lessons that you can not learn from anywhere but someones heart.
Could we all keep these Special Sisters in our prayers for all the upcoming occurrences in Pat's journey?? Can we organize to all pray for them "Wednesday night @ 8:00 pm Eastern"?? Both of them need our prayers so very much and now more than ever!!! Although Pat has given up eating her ice cream (brings tears to my eyes) I think an 'Ice Cream Tribute' that night would be touching.
I have been praying for Pat to find comfort and peace as she embarks on this phase of her journey. I ask for her to be as pain-free as possible. I pray for Donna to find the strength to continue to comfort Pat and to find her solice too.
Until we talk again Donna please know you are in my thoughts. Sending prayers and Love. Please remember to take care of YOU.>>Believe51
I cannot say much more except I thank our Sweet Wennydog for including us in on this journey of theirs. I still hear her desperate cries for help, cries that shall ring in my ears forever. When I cannot find the strength I will remember Donna and her trials and tribulations and I will surely find a way.
THANK YOU ALL IN ADVANCE FOR JOINING US IN PRAYERS & AN ICE CREAM TRIBUTE FOR OUR SWEET FRIENDS!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-28-2008, 02:37 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Count on me.
Mar
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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01-28-2008, 03:28 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Marie,
Of course...will join in the prayer. Sorry to read about Pat.
Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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01-28-2008, 03:40 PM
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#4
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Senior Member
Join Date: Jan 2008
Posts: 305
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I will join also.
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01-28-2008, 03:43 PM
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#5
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I will join in and include Donna and Pat in my prayers. I am really saddened to hear of Pat's condition and will pray for her nightly.
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01-28-2008, 03:54 PM
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#6
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Member
Join Date: Nov 2007
Location: Minneapolis, MN
Posts: 20
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Yes will bow my head in prayer for one of our sister's. Peace and love to Donna!!!!
__________________
MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.
"Believe in miracles, and watch them happen!"
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01-28-2008, 04:08 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Marie, Sure I will, count me in.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-28-2008, 04:26 PM
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#8
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Senior Member
Join Date: Sep 2005
Posts: 232
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You got it!! I will be praying on Wednesday night.
Love, strength and healing prayers being sent to Pat and Donna.
Karen
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01-28-2008, 04:35 PM
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#9
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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I will be holding Pat and Donna close in prayers.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-28-2008, 04:46 PM
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#10
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Most definitely I will pray. Wed., not at 8:00 Eastern time. Thanks for organizing this Marie. Prayer is so powerful.
God Bless you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-28-2008, 05:31 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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Count me in to. My love and prayers are with you both Donna and Pat always.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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01-28-2008, 05:44 PM
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#12
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Marie,
You're on my calendar!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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01-28-2008, 05:58 PM
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#13
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'm praying that God gives Pat and Donna the strength and comfort they need to get through this difficult time. Does anyone know what Pat's favorite ice cream is? See you on Wednesday. Peace, Bill
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01-28-2008, 06:04 PM
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#14
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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count on me too at eight
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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01-28-2008, 07:20 PM
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#15
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Member
Join Date: Jun 2007
Posts: 11
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I will definitely include Pat & Donna in my prayers and
celebrate them Wednesday night.
"I thank my God always, making mention of you in my prayers"
Philemon 1:4
__________________
GOD bless and praying for a cure
Lin
Best friend diagnosed with cancer
Annette's profile
1st surgery 12/17/07
Well differentiated infiltrating ductal carcinoma
Stage 1 Grade 1
Extensive ductal carcinoma in-situ (DCIS)
high nuclear grade, solid comedo type.
ER+ PR+ HER2 (3-4+)
Breast MRI 12/31/08
2nd surgery 1/04/08
Re-excision & sentinel node biopsy
invasive ductal carcinoma
Stage T1 N0 Mx
MUGA scan 1/21/08
Mediport inserted 1/25/08
Started 1st of 33 radiation treatments 2/08/08
Completed radiation 3/27/08
Started chemo (4 rounds Taxotere 105 mg + Cytoxan
every 2 wks, plus Neulasta shot)
Finished chemo 6/11/09
Started Herceptin every 2 wks for 1 year 6/25/08
Started Arimidex 1mg pill daily 7/23/08
Finished Herceptin 6/10/09
MediPort removed 6/18/09
Diagnosed w/severe Osteopenia in spine 9/20/09
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01-28-2008, 07:22 PM
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#16
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Inclued me also.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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01-28-2008, 07:23 PM
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#17
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I will pray for both of them. I think eating ice cream Wednesday is a great idea. I'd better go get some Ben & Jerry's.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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01-28-2008, 08:46 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Thank you for sending out this call---count me in, not just Wednesday but now and from now on. Please keep us informed. Hugs, Tricia
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01-28-2008, 09:00 PM
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#19
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Senior Member
Join Date: Jan 2008
Posts: 154
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Of course I will pray for them!
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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01-28-2008, 11:07 PM
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#20
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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My heart cries so for these brave warriors! thank you for letting us know and for providing a way for us to send our prayers for them together.
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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