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Old 10-01-2006, 10:18 PM   #1
ConnieIV
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Join Date: Sep 2006
Posts: 1
Looking for someone like me

Hi;

I'm stage 4 with met's to bones, liver, and lungs. All five of my lumbar vert. affected with a compression fracture in one and a rib fracture. My hip needed radiation as well as my spine and rib. Lesions in the thorax too. The liver is extensive and I was dx'ed 5/05. I have done 13 cycles[3wks on and 1 wk off] of Taxotere and I've taken Herceptin weekly since Aug '05. I also take 20mg of Tamoxifen and monthly IV's of zometa. This was my first dx with no history of cancer--had an MRI done because I had severe back pain and was told the news a day later[after MRI].

I'm doing very well and I was wondering if there was anyone with a similar dx or if you know of someone who might. I'm 49 and very active.

Thanks
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Old 10-02-2006, 04:13 AM   #2
Sheila
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Location: Morris, IL
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Connie
You have come to the right place...there are many Stage IV women on this site...with mets here there and everywhere....I am sure you will find someone with a similar diagnosis so I am bumping this up again....I have mets to the lymph nodes so I am stage IV......Welcome...you will find others who have walked in your shoes here, and more love and support than you can believe!
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-02-2006, 11:28 AM   #3
Vanessa
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I, too, am Stage IV. I had metastasis to the liver, chest wall and lining to the stomach. There is hope, I responded well to taxotere and herceptin and my follow-up scans were clean. I am very grateful for that and I wish you much success.
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Old 10-02-2006, 01:32 PM   #4
chrisy
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Location: Central Coast, CA
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I was dx 9/04 with extensive liver mets, 2 years after a mastectomy for DCIS (stage 0). So almost as good as "no" history!

I chemoed with taxol/carboplatin/herceptin for 6 cycles (I think the nitty gritty is in my signature) and am also doing well. Or as I like to say "STILL ABOVE GROUND" (usually followed by "expletive expletive cancer")

Glad to hear you are doing well, with so much do deal with right out of the gate! That must have been one helluva shock.

As you will see, there are many out there "like you" - just keep livin your life!

Keep up the good work!
chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 10-03-2006, 01:33 PM   #5
lucky4x
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Join Date: Feb 2006
Location: Canada
Posts: 40
Hi there!

Yup 4 time survivor here. DX 2000, 2002, 2004, and finally in 2005 ( Aug) with mets to lungs. Herceptin and Navelbine for 4 months and then straight Hercpetin and all lesions are gone ( or at least not visible).

I have had "complete response" to Herceptin.
I hope that you do too! I am also 49.

Lucky
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