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Old 05-21-2008, 05:34 PM   #1
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
cystoscopy results

Well ladies I had my cystoscopy today and only thing found was 2 very small polys which the urologist said were not the root of my problem. He said women of my age (53) tend to have some blood in their urine, but he cannot explain the intense pain I have, so he suggested a colonoscopy. So now I guess I will have a colonoscopy. This is all very disconcerning to me as I have this lower left abdominal pain since middle of March and every test is coming up negative. Anyone else dealing with this? I am trying not to be paranoid, but something is causing all this discomfort.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 05-22-2008, 08:17 AM   #2
Vi Schorpp
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Join Date: Sep 2005
Location: OH
Posts: 385
Debbie

Sorry I can't help you specifically. I just want you to know I'm thinking of you and that I hope your discomfort goes away soon.
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Old 05-22-2008, 03:51 PM   #3
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Vi Schorpp,
Thanks for thinking of me. Today I have been scheduled for a colonoscopy for June 14 ( I really dread doing this procedure). The prep is the worse part. Maybe I will have some answers then as to why I have this pain. I tell you this disease make a person so paranoid and I didn't used to be this way. I hate it. Anyway thank you again. What part of Ohio are you from? I used to live in the Akron-Canton area.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 05-23-2008, 04:50 AM   #4
jules9600
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Join Date: Apr 2008
Location: Ohio
Posts: 5
Paranoia

Debbie, sorry you have to deal with this. I understand the paranoia very well. I have had one issue after the other and always go to the "dark side" each time I'm waiting on test results. I think it is our new life now. Some days you can push it back and other days it runs your life. Hope they find the problem and it is an easy fix.
Jules
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Old 05-23-2008, 07:35 AM   #5
Vi Schorpp
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Join Date: Sep 2005
Location: OH
Posts: 385
Angry Debbie

Soon the colonoscopy will be behind you (sorry for the pun) and it's a great idea to have this. My husband HATED the prep, but thank goodness we don't do this too often. I'm from Walton Hills, OH, a rural area near the cities of Solon, Bedford, Independence, etc. I was actually born in Virginia, but have been raised most of my life in Ohio.

Speaking of colonoscopies, someone in the village did the prep and complained all day long to his wife about it. Then his wife discoverd that he was wrong -- his test was the following week.

Take care and enjoy this beautiful week-end.
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Old 05-23-2008, 12:56 PM   #6
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Great story Vi, I will have to make sure I start the prep on the right day. Thanks, you made me feel better!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 05-26-2008, 08:30 AM   #7
jules9600
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Join Date: Apr 2008
Location: Ohio
Posts: 5
Debbie,
Did you send me an email. If so, I accidently deleted it. It fell in my spam box. Sorry! I go see the Urologist tomorrow about the kidney lesion. Have been having a few more symtoms than before. So we will see. Have a beautiful holiday!
Jules
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Diagnosed 11/05 - stage 1, Grade 3 tumor, left breast. lumpectomy, no node envolvment. Her2 +, er/pr-, chemo, radiaton
1 year herceptin - finished 4/07.
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Old 05-26-2008, 05:48 PM   #8
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
No Jules, I didn't e-mail you. But good luck at the urologists. I only had polyps in my bladder so that was not my problem, having colonoscopy June 14. Best of luck to you.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
dhealey is offline   Reply With Quote
Old 05-26-2008, 07:44 PM   #9
Les
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Join Date: Jan 2006
Posts: 42
left side pain

Hi I have been dealing with left side pain(at my waist), and constipation since chemo, I've had cat scan and colonoscopy and the Dr.said it could be diverticulitus that just wasn't showing up yet,so when it acts up I have an antibiotic to take. I try to stay away from nuts and seeds and he also said to take miralax . this works most of the time but I did have an attack over mothers day but this time I knew what to do and didn't end up in the ER
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Old 05-27-2008, 08:07 AM   #10
Ruth
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Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
Debbie ~ I know that the prep is not too great however some comfort will be finding out if your colon is causing any of this pain. Also my parents said they felt great afterwards and understood what a true cleansing was! :-) My Dr.'s want me to have a colonscopy when I turn 50 because of the diagnosis of BC. Has anyone else had this recommendation? I have no family history of colon cancer but my Onc. & surgeon says that it is what they recommend.

Thanks ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 05-27-2008, 03:58 PM   #11
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Ruth
It is common for doctors to recommend a colonscopy to anyone after the age of 50. Before hand if you have problems. I know I am long over due. Just not looking forward to the prep.

Thanks ladies for all your replies.

Ruth are those your children in the picture? Cute children.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
dhealey is offline   Reply With Quote
Old 05-28-2008, 07:30 AM   #12
Ruth
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Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
Thank you Debbie...the prep part was not fun for my parents and as my Mom put it a little disturbing that she was full of so much $%^& !

Three of the kids are mine by birth and the other two from my husband but I consider them all mine :-)!

I hope you feel better. The not knowing what is causing the pain must be hard for you.

You are in my prayers.

Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
Ruth is offline   Reply With Quote
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