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Re: Neratinib Clinical Trial
i was interested in taking part in this clinical trial. when i first read about it there was a site in springfield, MA which is near me, but now it says "withdrawn" next to springfield. the next nearest site is in worcester, which is a good hour from me. i wonder if those of you taking part in the trial had to go to the actual site of the trial for every single test they do on you? are you able to do any of it at your 'home' hospital? i live 2 minutes from my hospital, so it's a hell of a lot more preferable than an hour+ commute on an awful turnpike. add to that, i already missed some work for cancer and i'm no more interested in missing more than my bosses are. there are also several trials in boston, but that's 2 hours. i'd be happy to go on occasion for an all day series of tests etc. but can't give up a lot of time. how much time do you estimate you spend at the hospital for this trial when you take part? i would be eligible for one for early stage BC and my own oncologist said she'd be willing to support me in any way to take part in it and called me a "great candidate" (not sure why!). since Herceptin is drawing to an end for me in october i figured it was time to look into this. thanks for any info you can provide, besides the diarrhea.  v
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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