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Old 11-28-2011, 10:09 PM   #1
Kellennea
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A break from tamoxifen???

Today I had a follow up appointment with my oncologist. My only complaint is the horrible joint pain that I am experiencing.

Up until this whole cancer nonsense I was active in yoga and excercise, now I'm lucky if I can get from a squatting position to a standing position without having to take a break on the way up!

I think its the tamoxifen, my Oncologist thinks it may be RA, possibly caused by chemo. She suggested a 2 week break from tamoxifen to see if it helps... but now I'm kinda freaking out thinking about not taking it. Has anyone here even taken a tomoxifen break?

I am so torn...
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10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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Old 11-28-2011, 11:09 PM   #2
Jackie07
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Re: A break from tamoxifen???

Hi,

Below is a thread on the same subject. Looks like your oncologist might be right. Perhaps you can ask your oncologist about the solutions for RA if you are concerned about taking a break from Tamoxifen?

http://her2support.org/vbulletin/sho...t=taking+break
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
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CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
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Old 11-29-2011, 04:02 PM   #3
tricia keegan
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Re: A break from tamoxifen???

I take arimidex which gives stiff joints and pain too and tried glucosamine/chondrotin in my first two years on this med which helped, although you need to be taking it about six weeks before noticing a difference.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-29-2011, 04:27 PM   #4
BonnieR
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Re: A break from tamoxifen???

I took a break once. My onc said it is commonly done and not a problem.
I developed painful trigger thumb on Femara so switched to Aromasin. My onc told me that these drugs are interchangable so that if we develop a bad side effect, we can switch to another. And that we all react differently, so you might not get the same issues as someone else. Anyhow, since there are a couple of options for AIs, it seems we can switch around and get thorough the recommended 5 years at least.
Keep the faith.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
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D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
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Old 11-29-2011, 05:21 PM   #5
tricia keegan
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Re: A break from tamoxifen???

I agree and switching is always an option, however I think I learned to live with any small side effects and don't notice them now and just agreed to another two years (at least) on arimidex as its working so well for me and prefer this to a recurrance and possibly more chemo!!!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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