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Old 03-31-2010, 04:39 PM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Not the news i had hoped for

Thank you all for the birthday wishes....you are all in my thoughts each day although I find it hard to post with all going on.
My Mother turned 82 the 27th, we had a surprise birthday party for her....it was bittersweet as she looked very frail and sad. Today she was admitted to the hospital again due to low blood sugar, confusion and lethargy....until all the tests come back, they dont know if its diabetic blood sugar issues, the liver cancer, another stroke...she has all but stopped eating looks overwhelmed. My Dad continues to have cardiac issues...partially stress i think from all going on.

I had my CT yesterday, the results were not what I had hoped. Only slight decrease in the mediastinal mass that is compressing the pulmonary artery and left bronchus, a few new areas of growth and a large pericardial effusion...guess that explains why i am still short of breath. I see the oncologist next Tuesday and will see what is next on the horizon for me....I would have thought that the pericardial effusion would have shown up on the echo a couple weeks ago, but nothing was said.....wish it was just the leakage from my implant! Getting it drained does not seem like a fun adventure from what I've read....
I keep hoping for my miracle...in this lifetime would be nice. I am sick and tired of the cancer fairy hanging out in my body!
Love to all of you!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin

Last edited by Sheila; 03-31-2010 at 04:44 PM..
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