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Old 09-24-2007, 05:31 PM   #1
Liz J.
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Question Actonel vs Fosamax

Hi All HER2 Family.

I was prescribed Fosamax about a year ago as a precautionary measure. I normally take what is prescribed without question, but I checked out Fosamax on the web and found so many issues along with many law suits from severe side effects. My last bone density was in 1/07 and it came out ok so I just take my calcium with D. My DRs. are insisting that I take the Fosamax. Now, my mother-in-law was prescribed Actonel. She is 79 and a former smoker. I am just trying to find out if one is safer than the other. I checked the web but it got too confusing. Is anyone taking either and if so how are you doing on it? Please advise.

Thank you.

Sincerely,

Liz J.
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Old 09-24-2007, 09:04 PM   #2
Jean
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Liz,
I am taking actonel, I am taking an AI and my onc. said due to the AI
I need to take the actonel. We choose actonel since it is easier on the
stomach. I had a bone density test in 2005/and one in 2006 I had improvment while on Actonel. I had a very slight bone loss on my right hip which has improved while on Actonel. I also take calicum and of course
eat foods high in calicum. Will be due for another bone density test.

Best of Luck,
Jean
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Stage 1, Grade 1, 3/30/05
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Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
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TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
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Old 09-25-2007, 11:42 AM   #3
tricia keegan
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Jean do you take Actonel weekly like fosamax?? I'm thinking I may ask my onc to switch me to this as I believe it would be easier on my stomach, I still have to take nexium daily to relieve problems I've had since chemo ended.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 09-25-2007, 12:02 PM   #4
Andrea Barnett Budin
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Wink My Fosamax Experience

During chemo I was dx w/osteopenia (the beginning of osteoporosis). I was alarmed, naturally. My GYN conferred w/a friend of his who was a rheumatologist(?sp) and he suggested I be put on PROPHYLACTIC DOSAGE OF FOSAMAX. HALF DOSAGE. This was 100 yrs ago when you took it daily! I then went to weekly. I think they now have mnthly.

Anyway, after 6 yrs (bond dens tests ev 2 yrs) I was told my bones were beautiful and to discontinue the Fosamax. I had no idea ones' bones could improve, I had hoped to retard further deterioration. This is fabulous. And remains still true. And, of course I do the calcium 600 w/D 400 twice a day. I have also been advised to take D3 1,000 for bones by my nut/onc (nutritonal oncologist guru/expert/healer) BTW!
BE WELL!
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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