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Old 12-23-2008, 03:00 PM   #1
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
~Swanky I am thinking about you

What is happening in Swanky's World?? Thinking so much about you lately, missing you and just noticed you are online.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 12-23-2008, 03:07 PM   #2
Soccermom
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Yea Swankster...where r u????

Hugs, Your ex roomie
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Old 12-23-2008, 03:21 PM   #3
swanky
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Hey Peeps!!!

Man you all are quick I just logged on and was lost in a long thread about spray cheese...quite fascinating.

I have been doing well...haven't logged in here in forever. Quick update is that I am currently coasting along on Xeloda and have finished 5 of 6 scheduled cycles. No more Herceptin for me - my pathology changed to Her2 negative.

just had scans due to liver (or right upper quadrant pain) of which lasted for about a month and a half before I told my oncologist...I was waiting to see if blood work went screwy, which it never did. He ordered a CT scan and I got the all clear - whew!

Been busy with the family (now 2, 4, and 6 years old) and work. So that is it in a nutshell!

I will be heading to Dallas in February for the YSC breast cancer conference...anybody going from here?

I hope you all are doing WONDERFUL and having happy holidays!
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Age 33 at dx - 9/15/06
L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely)
-AC DD, taxotere, taxol w/ herceptin
-Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes
Expanders in place
Pregnant when dx
Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3)

Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped
BRCA 1 positive
Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative
Currently on Xeloda and NED
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Old 12-23-2008, 03:22 PM   #4
swanky
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Marcia! Hugs and Merry Xmas to you darling :-)
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Age 33 at dx - 9/15/06
L breast, Invasive solid DC w/ extensive DCIS, Grade 3, ER/PR negative/ HER2 neu positive (barely)
-AC DD, taxotere, taxol w/ herceptin
-Bi lat 1/18/07, multiple foci of IDC admixed with DCIS, IDC varied from 0.1, 0.5, and up to 1.6 cm, 1/19 + nodes
Expanders in place
Pregnant when dx
Mom to 4 beautiful kiddos (boys: 5 and 14 mos, girls: 17 and 3)

Recurrence in neck lymph node and 8mm spot in L breast above expander, herceptin stopped
BRCA 1 positive
Clinical trial since 7/23/07 (PARP INHIBITOR)-NED for 9 months, supraclavicle node popped back up,..so we cut it out! Full neck dissection - only 1 positive node ER/PR negative and now HER2 negative
Currently on Xeloda and NED
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Old 12-23-2008, 03:48 PM   #5
karenann
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You have been on my mind, too. Glad to hear you are doing well.
Hugs,

Karen
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Old 12-23-2008, 04:22 PM   #6
Soccermom
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Cool

Hi honey!
I just got the brochure for the LBBC thingee in Dallas, but I am too old for the "young survivors" seminars ,methinks!? (At 49 dont think I "quite" made the cutoff)..sigh...
I WILL however be at the FORCE conf in May (in Orlando this year). I am relocating to Tampa area soon...hope to see you in the Spring. Hugs to all 3 of your gorgeous babies (and DH)...
I am so glad to hear that you are doing well and your scans were GOOD!!!!!!!!
Wooohhhoooie !

Merry Christmas and a Happy New Year !!!!!!

Hugs and LOve ,Marcia
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