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Old 11-03-2009, 08:58 AM   #501
ElaineM
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Thumbs down Re: The Campfire

I left you all a thermos of hot coffee, a thermos of hot green tea, some warm oatmeal, a few bagels and another thermos of mixed fruit juice. What can I say? I have been juicing again. I thought the warm things would take the chill off the fall days. Breakfast is good anytime of the day or night, so enjoy!!
Sorry about the thumbs down. I was trying for my usual happy face and made a boo boo. Oh well.
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Last edited by ElaineM; 11-03-2009 at 09:00 AM.. Reason: additon
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Old 11-26-2009, 10:36 AM   #502
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Re: The Campfire

Needed a little warm up here before I get baking. Love you all!
Celeste
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"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 11-26-2009, 09:40 PM   #503
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Wink Re: The Campfire

Hi,
I just dropped by to warm up on this very windy evening in Hawaii and to sit awhile and think about my blessings.
I brought some homemade cranberry sauce and sweet potato pudding to share. I always make more than I can eat.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 11-30-2009, 11:56 AM   #504
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Wink Re: The Campfire

Mele Kalikimaka, Hauoli Makahiki Hou !!
(Merry Christmas and Happy New Year in Hawaiian)
Hey everybody,
I have been reading your posts in this thread and the thread I started about virtual Thanksgiving. Sharing our holiday experiences, feelings and memories has been wonderful.
Here is my suggestion
Let's have a holiday open house around the campfire !!
Feel free to drop by whenever you want to rest, pray, share memories, warm up, share food, decorate, celebrate whichever December and January holidays you celebrate. You will never feel alone at the campfire. It is our very own virtual retreat center !! I think Bill must be finished with the potty by now, so we shouldn't have to worry about that !!
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Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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Old 12-01-2009, 10:07 PM   #505
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Re: The Campfire

I'm feeling uncertain tonight. Came by to throw another log on the fire and listen to some good conversations.
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2.5 cm, Er/Pr-, Her2+++
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AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
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Old 12-01-2009, 11:50 PM   #506
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Re: The Campfire

Tonya,

'Uneasy' or 'uncertain'?

Thanks for adding the log, it's burning quite well when I got here. So now I am cozy and warm. Felt like to turn in. How about 'you' start some 'conversation' - I'll catch up tomorrow...

Sleep tight...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 12-13-2009, 02:23 PM   #507
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Re: The Campfire

Hello, Ladies! I hope you're all warm and well. I thought I'd stop by, toss a few logs on the fire and take the chill off. I've brought a pot of turkey chili with me to simmer in case anyone gets hungry. Elaine, I know what you're thinking, but I also brought a strainer for you to use so that you can strain out the turkey. (Just put it into my mug, please).
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Old 12-13-2009, 04:09 PM   #508
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Wink Re: The Campfire

Thanks Bill !! The chili is good. I am dropping the turkey pieces I took out of my chili in your mug right now. I have a little tofuky and a few beans I can throw in mine to replace the turkey.
Chili is great on a cool winter evening.
I brought a little warm apple cider to keep us warm after we eat up all the chili.
What a cute grandaughter you have !!
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-16-2009, 03:00 PM   #509
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Re: The Campfire

That baby looks like the queen of the world in that picture Bill. She knows she's loved!
__________________

"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.

"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)

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Old 12-16-2009, 05:02 PM   #510
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Re: The Campfire

Thank you, Ladies! She is the happiest, most alert baby you've ever seen. She is such a sweetheart.
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Old 12-17-2009, 07:30 AM   #511
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Re: The Campfire

Bill and Ladies,

Thank you for keeping the fire going. Happy holidays to you all.

AmeliA
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Old 12-30-2009, 04:01 PM   #512
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Smile Re: The Campfire

I think there is a book thread around here somewhere but I was too lazy to look for it. I want to recommend The Lovely Bones. Tough subject matter but a very interesting book. IMHO.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 02-17-2010, 05:57 PM   #513
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Re: The Campfire

Tossin' a log on the fire. There's been so much snow around here lately that we've let our fire dwindle a bit. I blame Lee, and that's easy for me to do because he's always the one to blame, as I left him in charge of wood-gathering and fire-tending, but oh, well.....Anyhow, I've scraped off a little snow from the wood-pile for Lee so he wouldn't get his hands cold and chucked some wood on the fire....
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Old 02-17-2010, 06:47 PM   #514
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Re: The Campfire

Stopped by to warm my hands up a bit...cold down here in Bradenton too...just wanted to see the friendly faces of my Her2 buds,

Marcia
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Old 02-17-2010, 06:56 PM   #515
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Re: The Campfire

Good to see you, Marcia. I just brought some mesquite logs from Central Texas that's good for B-B-Q. Thought Bill might have caught a rabbit or something while waiting for Lee...

[By the way, got a phone call from the geneticist of the hospital. She said the BRCA1 variant I have (v1247i) has just been taken off the list. Now we'll need to check into the HNPCC factor that could be the cause of my 2nd Brother's colon cancer and other cancers in the family - lymphoma, brain cancer...]
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-17-2010 at 07:43 PM..
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Old 02-18-2010, 12:15 AM   #516
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Re: The Campfire

Ok Jackie, so you are BRCA negative for 1 and 2? If so, thats great!

Hi Marcia! Hi Bill!

FYI: Hawaii is having the WORST drought in the nation! Now isn't that the wierdest!! And this is the warmest winter that I can remember!!
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 02-18-2010, 02:01 AM   #517
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Re: The Campfire

'Global warming'?

Could it be caused by too many 'Campfires' ...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 02-18-2010, 09:21 PM   #518
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Wink Re: The Campfire

I am stopping by to warm up by the fire. I know most of you don't believe me, but it can get cool and windy in Hawaii during winter. Maryanne how has the weather been on the Big Island? It has been pretty windy over here---------sweater weather !!!!!!!!!
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 02-18-2010, 11:42 PM   #519
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Re: The Campfire

Yes this global warming is creating some extreme conditions around the world! Very noticable here in the U.S.!
Elaine...Big Isl...this week has been very chilly and windy here. I really like it!! Right now it is 8:45pm and 59 degrees out!! Must be the "wind chill factor"!! hahaha!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 02-19-2010, 11:11 AM   #520
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Re: The Campfire

i'd like to know where the global warming is this winter. we've had below normal temperatures just about all winter.
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st 1, gr 3, er,pr-, her2 +,
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