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06-30-2015, 01:12 PM
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#21
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
That's so kind, thank you Janie and I look forward to welcoming you to the ten year club next year too ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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06-30-2015, 06:28 PM
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#22
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Senior Member
Join Date: Mar 2014
Location: Glendale, AZ
Posts: 210
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Re: All clear Mammo and ten years out!
Congrats!! So encouraging to hear as we had pretty much the same diagnosis, 2cm, 3 lymph nodes, triple positive. Thanks for sharing!!
Kathy
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Kathy
38 years old!
January 17th 2014-mammo, ultrasound, biopsy
January 20th 2014- diagnosed, ER/PR+, Her2+++, Stage 2A
January 21st 2014-MRI, right breast only plus lymph nodes
January 23rd 2014- Pet scan-2 cm tumor, 3 lymph nodes
February 4th 2014-port insertion
February 12th 2014-first chemo treatment(TCHP x6 cycles)
May 28th 2014-LAST chemo treatment!!
July 10th 2014-double mastectomy
July 29th 2014-start radiation(30)
Sept. 11th 2014last radiation treatment!!!
November 12 2014-started Tamoxifen
January 20 2015-reconstruction begins, lat flap
February 4 2015-last Herceptin treatment!!
April 24, 2015- pet scan-NED!!
June 3 2015- exchange surgery, port removed!!
September 8 2015-hysterectomy/oophorectomy
September 15 2015-Revision of lat flap reconstruction
December 23 2015-nipple reconstruction
May 9th 2016-Mets to pituitary gland, liver and C7 vertebrae
May 10th-port put back in:(
May 17th- biopsy of mass on back
May 19th-started Herceptin/Perjeta
May 20th-5 treatments Cyberknife to pituitary gland tumor
June 9th-Started THP (will have 6 cycles)
August 17th-MRI of brain, significant reduction in tumor
😃, repeat MRI in 3 months. Received first Zometa
infusion.
June 24th 2019- Thoracic spine Mets, leptomeningeal Mets , 10 radiation treatments
Aug 1st- Ommaya Reservoir implanted
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07-01-2015, 06:47 AM
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#23
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Senior Member
Join Date: Feb 2014
Location: Minnesota
Posts: 184
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Re: All clear Mammo and ten years out!
Congrats! and Way to go!
__________________
[SIGPIC]Lisa
Routine mammogram 12/20/2013
Call back with repeat films on12/31/2013 Ultrasound with core needle biopsy same day
Dx 1/2/2014 IDC ER/PR+
1/10/14 HER2 +
2/14/14 BRCA results negative
2/17/2014 skin & nipple sparing BMX with reconstruction Tissue expanders placed
IDC Stage 2A left breast. 9mm tumor no other CA 1/4 nodes positive
ER + PR + Her2 +(by FISH)
Right breast no cancer, sclerosing adenosis
3/13/14 Round 1 AC minimal side effects
3/27/14 Round 2 AC
4/10/14 Round 3 a little more nausea
4/24/14 round 4 hurray! Done with phase 1!
5/8/14 THP ( taxol weekly x12, Herceptin & perjeta every 3 weeks x 4)
7/24/14 done with chemo
Continue of Herceptin every 3 wks x 1 yr
5/14 start Tamoxifen x 5 years
8/18/14 removal of TEs silicone implants placed
9/14/14 Cellulitis Right Breast, suspect infected implant. Managed with Oral antibiotics, avoided surgery to remove implant. Whew!
12/17/14 nip & tuck revision of Left breast
We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face. The danger lies in refusing to face the fear, not in daring to come to grips with it. We must do that which we think we cannot do. -Eleanor Roosevelt
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07-01-2015, 11:14 AM
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#24
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
Thanks ladies and my best wishes to you too Kathy!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-01-2015, 06:07 PM
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#25
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: All clear Mammo and ten years out!
Gosh, Tricia, I cannot wait to join the 10 Year Club! Cheers to you! May you see the 20 Year Club in another decade! I am 7 years out and see my Onc. yearly. I am not sure how long that will continue and as we have become friendly I will miss seeing her. She only lives down the next lane so I can walk by and wave if I feel the need! HaHa.
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Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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07-02-2015, 11:33 AM
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#26
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
Thanks Laurel and it'll be here for you too before you know it, how nice to be such good friends with your Onc too. ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-05-2015, 05:52 AM
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#27
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Re: All clear Mammo and ten years out!
Tricia~ huge huge congratulations!!! Such a big milestone... I was released by my surgeon at 5 years and oncologist at 10. To me it was a relief because I had gigantic anxiety going at that point once a year to the cancer center for the last few years from about 7-10 years. Now it's 2 years after that and I love my internist and feel she gives me all the support and understanding of my occasional worries. My oncologist retired about a year before I was let go and my favorite nurse also retired. I threatened them that they couldn't retire until I was at least past 5 years 😃....I never saw anyone else until the last couple years. My Onc. stepped out of the box with me in treatment as I was not on the Herceptin trial back then since I wasn't quite stage 4 (almost but not quite) but he fought and got me (and my insurance) to cover it. I was the first one not stage 4 for him to treat with Herceptin. We did a lot of out of the box stuff. I love the man dearly and feel he helped in many big ways of saving me. I am not missing at all going back once a year. I found a great Dr and I trust her and trust my body to give me signals of any concerns. I am definitely incredibly more tuned into myself and know when to check on myself.
Congrats again~ it will free you up some mentally but it will always be with you. I spent my 30's with three small kids worried almost daily about tomorrow. Now I can take a breath and realize we are all headed to the same place eventually it's always been our road we take alone and we must make the most if it as best we can.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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07-05-2015, 07:12 AM
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#28
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: All clear Mammo and ten years out!
Tricia, Welcome t the 10 years club. Its a wonderful place to be. I thought I would be changed to yrly Onc visits last month, but my doc wants to continue seeing me every 6 mos. I am ok with that. Love my Onc!
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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07-05-2015, 09:34 AM
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#29
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Senior Member
Join Date: Mar 2014
Location: Glendale, AZ
Posts: 210
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Re: All clear Mammo and ten years out!
Well said Ruth!! Thank you all for sharing your stories it is so encouraging for those of us newly diagnosed....
Kathy
__________________
Kathy
38 years old!
January 17th 2014-mammo, ultrasound, biopsy
January 20th 2014- diagnosed, ER/PR+, Her2+++, Stage 2A
January 21st 2014-MRI, right breast only plus lymph nodes
January 23rd 2014- Pet scan-2 cm tumor, 3 lymph nodes
February 4th 2014-port insertion
February 12th 2014-first chemo treatment(TCHP x6 cycles)
May 28th 2014-LAST chemo treatment!!
July 10th 2014-double mastectomy
July 29th 2014-start radiation(30)
Sept. 11th 2014last radiation treatment!!!
November 12 2014-started Tamoxifen
January 20 2015-reconstruction begins, lat flap
February 4 2015-last Herceptin treatment!!
April 24, 2015- pet scan-NED!!
June 3 2015- exchange surgery, port removed!!
September 8 2015-hysterectomy/oophorectomy
September 15 2015-Revision of lat flap reconstruction
December 23 2015-nipple reconstruction
May 9th 2016-Mets to pituitary gland, liver and C7 vertebrae
May 10th-port put back in:(
May 17th- biopsy of mass on back
May 19th-started Herceptin/Perjeta
May 20th-5 treatments Cyberknife to pituitary gland tumor
June 9th-Started THP (will have 6 cycles)
August 17th-MRI of brain, significant reduction in tumor
😃, repeat MRI in 3 months. Received first Zometa
infusion.
June 24th 2019- Thoracic spine Mets, leptomeningeal Mets , 10 radiation treatments
Aug 1st- Ommaya Reservoir implanted
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07-05-2015, 02:06 PM
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#30
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
`Thanks Linda and Kathy, and thanks so much Ruth, you were blessed to have your Onc and I'm so pleased he took that first step in treating you with Herceptin. I have a friend who's daughter was only two when she was dx and my friend is now thirty years out and I'm determined to catch up with her ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-06-2015, 02:35 PM
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#31
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Re: All clear Mammo and ten years out!
Major YAY for you Tricia! The best of news. Just keep embracing each day with gratitude and joy!
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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07-11-2015, 06:56 AM
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#32
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: All clear Mammo and ten years out!
Dear Tricia,
Welcome to the 10 yr. club.
lol
We came to the site the same year and I remember those early days. Who would have "thunk" we would be here now?
Continued healthy blessings are being sent to you.
Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-11-2015, 08:18 AM
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#33
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: All clear Mammo and ten years out!
congrats, so pleased to hear this!
hugs sarah
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07-11-2015, 11:32 AM
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#34
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
Jean, thanks so much and I didn't think back then I'd be here and still well at ten years ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
Thank you too Sarah!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-11-2015, 11:37 AM
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#35
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Re: All clear Mammo and ten years out!
Welcome to the decade and plus crowd, Tricia!
There is some discussion that those who are triple positive should continue to be monitored farther out for late recurrences. Just who should do the monitoring isn't clear, but the general impression I get is that it is to some degree more of a question of just how comfortable the patient is with "letting go" or not than it is of whether the doctor is ready for that.
I stopped seeing any onc 4 years after completion of tx, in 2006 and instead have continued to be seen by my BS for yearly checks and diagnostic mammos. Three years ago he mentioned the higher risk for late recurrences for HR positives, but also because I have a very strong family hx for bc, and he put me on a schedule of mammo yearly alternating with 6 months later breast MRI (so that I am getting imaged every 6 months by yearly mammo and yearly MRI). I don't have them done in Alaska where I live, and instead have them done at a cancer center in Seattle.
My older sister had IDC back in 2000 that has never recurred (for which she did no chemo or tamoxifen), but since then she was dx'd with IBC in 2010 and then again this year with IBC recurrence. So I continue surveillance in part due to family hx.
Doing well w/o recurrence (but forevermore fighting weight gain),
A.A.
__________________
Dx 2002 age 51
bc for granny, aunt, cousin, sister, mother.
ER+/PR+/HER2+++, grade 3
IDC 1.9 cm, some DCIS, Stage 1, Grade 3
Lumpectomy, CAFx6 (no blood boosters), IMRT rads, 1 3/4 yr tamoxifen
Rads necrosis
BRCA 1 & 2 negative
Trials: Early detection OVCA; 2004 low-dose testosterone for bc survivors
Diet: Primarily vegetarian organic; metformin (no diabetes), vitamin D3
Exercise: 7 days a week, 1 hr/day
No trastuzumab, no taxane, no AI
NED
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07-11-2015, 12:05 PM
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#36
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: All clear Mammo and ten years out!
I get checkups with a mamma-care nurse practitioner who works at my breast surgeon's office. If at any time she is worried about anything at all, she calls him in. Because of my scarring, I don't get the regular mammo's that all women in my country get between ages 50 and 75. They would have to send me to the hospital for more pix anyway.
Actually, it's not the breast recurrences that I fear, as I always have been able to feel the tiny lumps I had while I had cysts (premenopausal). I worry about distant recurrence and that wouldn't be picked up by mammo.
So the NP and I decided to space the mamma's at 18 months, which suits me fine.
Love
Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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07-11-2015, 03:14 PM
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#37
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
Jacqueline, That's my worry too and I can face a local recurrance if I have to but it's the fear of a distant one that concerns me.
AA, thank you for that info and when I posted this I was mostly concerned of a late recurrance too. I imagine as being the early one's for having herceptin for early stage bc only time will tell what the outcome will be, but must admit to having some fears despite reaching this landmark of ten years but que sera sera....
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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07-22-2015, 07:12 AM
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#38
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: All clear Mammo and ten years out!
congratulations to you, tricia! i love coming here and seeing several good news posts.
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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07-22-2015, 10:26 PM
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#39
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Senior Member
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
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Re: All clear Mammo and ten years out!
Yay!!!! I hope we all get to do this every year ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Julie
Live in Orange County, CA![](signaturepics/sigpic9860_1.gif)
Diagnosed with DCIS Oct. 2012
Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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07-23-2015, 12:00 PM
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#40
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: All clear Mammo and ten years out!
Thanks Ladies for your good wishes ![Smile](http://her2support.org/vbulletin/images/smilies/smile.gif)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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