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Diet and Nutrition By popular demand our nutritional message board. This board will be monitored by a Registered RD who is certified in oncology by the American Dietetic Association

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Old 10-28-2011, 09:37 AM   #1
CarolineC
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Diet since my diagnosis

When I was first diagnosed in 2009 I did an overhaul of my lifestyle. Part of the plan was no caffeine, cut down on sugar or only have honey or brown sugar, no more soy milk, free-range chicken and eggs, upping my fruits and especially cruciferous veg. I feel that the soy milk was making my already precarious hormones be tipped more toward estrogen dominance. Why? Because in 2006 when I was feeling really crappy I started some dietary changes and one of them was starting to drink soy milk because I thought my stomach upset was caused by dairy. That is when I started losing weight; 10 pounds in four months and 15 more in the next 2 years before diagnosis. I was 140 pounds and dropped to 118.
I have a very sensitive system that seems to react to anything, good or bad, and I try to steer clear of foods that contain soy since my tumour was very estrogen positive (90%). In my support group we discuss the controversy around soy and have decided to avoid it because it's in everything, even as a filler in vitamins. I am not saying the soy caused my cancer; there were a myriad of things that were going on. A hormone consultant told me 5 months before I was diagnosed that although my estrogen was okay, because I had lower than the lowest progesterone, it made me estrogen dominant. We're all so different and we're being told as a society to eat this or take that without knowing our hormone status and how those things may affect it.
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Old 10-29-2011, 12:29 AM   #2
Jackie07
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Re: Diet since my diagnosis

Amy has compiled a list of links about soy in another thread http://her2support.org/vbulletin/sho...&highlight=Soy 'Flaxseed and soy' :


http://ww5.komen.org/ContentSimpleLe...?id=6442451776

http://www.breastcancer.org/tips/nut.../foods/soy.jsp

http://www.livestrong.com/article/44...cer-survivors/

http://www.aicr.org/foods-that-fight...FYIQNAodTSKOoA
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Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
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Last edited by Jackie07; 10-29-2011 at 12:33 AM..
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Old 10-29-2011, 11:51 AM   #3
ElaineM
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Wink Re: Diet since my diagnosis

Sometimes endocronologists can help figure the hormones out and apply that information to a persons disease and nutritional needs .
There are also blood tests to check on hormone levels in addition to the information about hormones we receive after biopsies and surgeries.
One lab that does this work is Genova Diagnostics (Great Smokies Lab). The website address for cancer related hormone testing is http://www.gdx.net/tests/search.
Some insurance companies cover testing done at this lab.
I had hormone testing twice. The first time my hormones were out of balance. After some dietary and other interventions I took a second test. Everything was normal and in the correct proportions.
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Old 10-30-2011, 03:10 AM   #4
Jackie07
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Re: Diet since my diagnosis

Happened to see this link on the Livestrong website:

http://www.livestrong.com/article/25...cer-survivors/

ps. Caroline you are so right: "We're all so different and we're being told as a society to eat this or take that without knowing our hormone status and how those things may affect it." Glad you've got your hormone level checked. Maybe the doctors will be 'educated' by us if more cancer patients will show them the scientific data and request for the hormone check.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 10-30-2011 at 01:16 PM..
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