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Old 04-25-2011, 08:10 AM   #1
Lisa1962
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Milestone infusion - #100!
It's been a long while since I've posted here, but this site was so helpful when I was diagnosed over 6 years ago.

On 5/27/11 I will have my 100th infusion of Herceptin.... (#99 will be on 5/6) and I almost can't imagine it.

I just thought I'd post this as encouragement to anyone else who wants to read things like this.

Emotionally I'm suddenly a little overwhelmed and recently got a case of the "what ifs" which is something that doesn't happen that often... sometimes I guess you feel that if you've been around this long at Stage IV your luck is bound to run out. I've planned a weekend with my husband and son at a B & B on the shore - it was either that or a celebratory party and I didn't want all that work!


I'm sending good thoughts to all of you.

Edited to correct "son" - he may be the "sun" to me - but probably not to the rest of you

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Old 04-25-2011, 09:47 AM   #2
caya
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Thumbs up Re: Milestone infusion - #100!
Great news to share with us Lisa. I'm sure your post will give much hope to all, especially those who are stage IV.

Enjoy your weekend celebration.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 04-25-2011, 09:52 AM   #3
Ellie F
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Re: Milestone infusion - #100!
Glad to hear this news. Sounds like vit h is working really well for you. Do you still have any side effects?
I also feel my son is my sun!

Best wishes
Ellie
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Old 04-25-2011, 10:00 AM   #4
schoolteacher
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Re: Milestone infusion - #100!
Thanks for posting.

Amelia
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Old 04-25-2011, 09:55 PM   #5
Trish
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Re: Milestone infusion - #100!
Great news Lisa, I love the sound of your celebration. I hadn't even thought of counting the number of infusions but I like it as a measure of stage IV survivorship. May there be countless more.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 04-26-2011, 05:15 AM   #6
krisvell
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Re: Milestone infusion - #100!
Lisa,
I love reading posts like yours. It makes me very happy for you and gives me inspiration.
100th infusion and 6 years. Wow!; that's quite an accomplishment. I like your celebration at a B&B at the shore. I hope you and your family have a wonderful time. You can kick back your heels, feet in the sand and enjoy the moment and wonderful accomplishment that you've achieved.
Wishing you many, many, many, more...... (oh, what the heck - forever celebrations!
Hugs,
Kris....
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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