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05-07-2007, 11:42 AM
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#1
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Discovery Channel - Living With Cancer
Did anyone see the three-hour program last night (Sunday) on living with cancer. Lance Armstrong, Leroy Seivers and Elizabeth Armstrong were on the show. I was interested in the technique of cancer ablation that killed Sievers lung cancer tumors. Has anyone on this board ever discussed cancer ablation with their doctor?
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-07-2007, 01:27 PM
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#2
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Hey there!
I did see the program last night. I was curious about that procedure also- haven't heard of it. What did you think about the show overall?
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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05-07-2007, 02:47 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I watched it too. I like the point of going where the most technology is for your treatment....it hit home for me. Also the fact that the more money, the better opportunity for treatment...only in America .....that needs to be changed. But it is like that for everything in the medical industry.
It is supposed to be on again tonight at 8 central on the discovery channel/
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-07-2007, 02:57 PM
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#4
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Senior Member
Join Date: Oct 2006
Location: Connecticut, USA
Posts: 29
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i have seen discussion about RAF as applied to liver tumors that are mets from BC. this link discusses what RAF is, very briefly.
http://www.clevelandclinic.org/general/rfa/rita.html
i know there can be complications due to the location of the tumor that sometimes make RAF inappropriate, but for others have heard it is a pretty easy process.
steve
__________________
Sarah's history:
DX Sept 03 Stage 2B Grade 3
BRCA 1 positive
RT Mastectomy
4 cm lobular 1+node ER-/PR- Her2+
chemo 2004:
4 cycles AC
4 cycles Taxol
herceptin 2004-2005
june 06 stage IV: lung, bones
weekly taxol
1/3wk herceptin
Oct/November 06: new primary left breast
ductal 4cm+
mastectomy
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05-07-2007, 03:18 PM
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#5
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Yes, great program! I couldn't quite stay awake for the whole thing, but recommend it.
BTW, it's Elizabeth Edwards as the third guest.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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05-07-2007, 04:26 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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I saw the program last nite
and just connected so much with what they were saying. Everything that they said just mirrored what I always think or say. I guess you have to be going through it yourself to truly understand what goes through a person's mind.
I have had Radio Frequency Abalation to my liver and was very curious about this doctor at John Hopkins. I was trying to find his name on site today but could not. I am interested in talking to them to see if it is possible to abalate the tumor that I have in my nodes. My surgeon at Moffitt told me it was not because it is now systemic and I am not really sure about the area where they are. I would like to speak to someone else to get their opinion.
If anyone can remember the name of that doctor, will you pass on to me. I did record the show, so maybe I can get more info once I watch again.
I was amazed at how Leroy is now stable and hopefully something else will come along for him.
If you did not see last nites show, I think it worthwhile catching it tonite.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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05-07-2007, 04:43 PM
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#7
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks, Irene, for recommending the show. I will tune in tonight.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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05-07-2007, 05:06 PM
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#8
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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The following is an email exchange with a prominent RFA physician. I deleted his name but will supply it to those who request it.
RFA - Lung Tumors
Dear Dr.
I am the webmaster for the HER2 Support Group . Our organization is composed of breast cancer patients diagnosed with HER2 breast cancer. Several members have had RFA for metastasis to the liver with excellent success.
Tonight on a Discovery Channel program on Living With Cancer, I was surprised to see that RFA is being used to treat tumors on the lungs. Have you ever treated metastatic lung tumors? We have several members diagnosed with them and wish to advise if this is an effective alternative treatment.
Joe,
I have ablated breast cancer metastases before with some success. I believe there are a subset of breast cancer patients that have just a few spots of disease ( e,.g oligonodular mestastases) either in liver or lung or both that benefit from local therapy such as ablation or stereotactic radiotherapy. I have enclosed a paper on lung RFA from our institution. Lung RFA will be featured on a PBS series Healthy Mind Healthy Body in late June and early July. I will be prominently featured on the piece.
Best regards
Damian
Paper on Lung Tumors:
www.her2support.org/rfa.pdf
Warmest Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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05-07-2007, 06:53 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Irene, I am not sure if I have the spelling right...but I think that doctors last name was; "Georgitis". Maybe you could google it and see if it comes up? I am not sure if that helps...but I tried.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-07-2007, 08:47 PM
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#10
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Does anyone know if the show will be aired again?
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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05-09-2007, 04:08 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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To Mjo
Thank you so much for all of that info on Dr. Georgiadis (sp)
Although mine is not in the long, I thought I might check to see if it were possible for me.
Thanks again and have a great day.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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