Glad I got 2nd Opinion
Hi everyone,
First off, I want to thank everyone who told me to get a second opinion. Secondly, what a differnce another doctor can make! He was so easy to talk to and detailed everything I was wondering about.
Yes, I should stay on Herceptin for maintnenance. If after several years (did not know how many) of NED then we would discuss discontinuing H, but not after 6 months as my onc now wants to do.
Also, he is involved with the T-DM1 trials at the Univ. of CO and gave me all the details of the trials. They will be doing expanded access very soon, and he said he thinks it will obtain FDA approval the first of next year. He had hoped for the end of this year, but does not think that is going to happen.
Also, if I recurr again, he definitely wants to biopsy to see if anything has changed. Reference to info. Lani just provided from ASCO.
So, I will get my Zometa on the 9th and tell my onc. that I am going elsewhere.
I have not had to do this before so any ideas as to how best to handle switching is greatly appreciated.
Still going for the ECHO and stress test as I did lose 10% heart LVEF since Feb. but plan to get the Aug. H at new clinic.
Thank you again to everyone for keeping us up-to-date and caring enough to do so.
Best regards to all,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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