 |
|
02-19-2014, 11:58 PM
|
#21
|
|
Senior Member
Join Date: Jul 2012
Location: Utah
Posts: 124
|
Re: HELP please!! First time on taxotere
Adriana~
I am so sorry to hear about your rotten side effects. I finished Taxotere in Dec 2012. I couldn't have been happier to get done with that drug. My oncologist told me that I had "every rare side effect". I didn't get mouth sores (the only thing I didn't get) and I think it was largely because I started out rinsing my mouth with Biotene mouth rinse and a baking soda mix. I sucked on ice chips during and after chemo. I drank a lot of water and also cold, slushy drinks - anything cold helps. I did end up with chemo hands from the Taxotere (the chemo burned it's way out via my hands). I started (too late) immersing my hands in ice water for as long as I could stand it for the first 24 hours after chemo. I didn't have that problem after that. Taxotere - ugh - Such misery! Make sure to tell your oncologist about your SE's. Good luck - hang in there!
Jeri
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC
2 cm - Grade 2 - Stage IIB
HER2+++
ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012
Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!
15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!
|
|
|
|
02-27-2014, 09:46 PM
|
#22
|
|
Senior Member
Join Date: May 2006
Location: California
Posts: 668
|
Re: HELP please!! First time on taxoter
Thank you everyone for your kind responses.
I'm feeling better - no I'm not -- but this is what I say to myself everymorning
I'm feeling better...c You can't control my body, go away, I hate you!
I didn't invite you to come into my life so leave now!
I finally got around to post this short note. I'm still around,
will finish taxotere in no time and will be back on my feet in no time.
Love you all. Talk to you soon.
Addie
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
|
|
|
|
|
02-28-2014, 10:21 AM
|
#23
|
|
Senior Member
Join Date: Dec 2013
Posts: 1,045
|
Re: HELP please!! First time on taxotere
Hi Adiana, everyone above me has said it all, just wanted to let you know I am thinking of you, I head into my LAST TCH on March 10 and yes, Taxotere is AWFUL!! Days 3-6 are the worst for me, just like StephN says, with the neck/jaw pain, etc -- I think that may be the lymph system doing its best to pump the crap out of our systems ... whatever it is, its miserable, I just lay here in the chair for days on end. And slug down as many fluids as I can, that does help.
Let everyone around you do as much as they can and are willing to do for you! I live in my pjs and take a lot of Epsom salt baths the first week after chemo.
Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.
Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".
Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.
Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.
Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.
Nov 25, 2013 Begin 6 rounds TCH.
March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!
March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.
March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)
April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm
May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)
June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia
Nov 17, 2014 FINAL Herceptin!
Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.
Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.
Dec 17, 2014 Port is OUT!
January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
|
|
|
|
|
02-28-2014, 05:40 PM
|
#24
|
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
Re: HELP please!! First time on taxotere
Adriana,
I am glad you are hanging tight, but so sorry Taxotere is such a drag for you. I found Taxol to be harder on me then the AC, so you will not get an argument from me that it is a real stinker. I know you will tough it out, but wish you did not have to endure this. I will pray the remaining infusions are a easy.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
|
|
03-01-2014, 06:01 AM
|
#25
|
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
Re: HELP please!! First time on taxotere
hello
i was on taxol, which is similar. my onc put me on weekly infusions for 6 months because he felt i would tolerate it better, just a thought to bring up, use a bicarbonate mouth wash several times a day. i was very tired.
stay strong
love sarah
__________________
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 08:24 PM.
|
Linear Mode
