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Old 11-30-2009, 01:13 PM   #1
Leslie304
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Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
Re: vickie h update

Hi Cap,
Vickie has become a dear friend to me. I 'met' her when I was first diagnosed and somehow was drawn to her posts. We soon started emailing privately and I have appreciated her friendship. She tells me often how grateful she is to have you in her life. She is an extraordinary person. I tell her often but wanted to tell you as well, that she is never far from my thoughts and she is in my prayers nightly. I hope the TDM1 trial gives you both the renewed hope that you are so desperate for. I'll be thinking of you. Thanks for posting an update, I was worried as I haven't heard from her lately. Please give her a warm hug from Leslie in New Jersey.
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 11-30-2009, 05:58 PM   #2
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: vickie h update

Hi Cap, if you see this please tell Vicky I said hi and I wish her all the best! I hope this trial is working it's magic on her...no one deserves it more. Vicky is such an awesome, loving and compassionate person and I so want the best for her. I will continue to keep you both in my thoughts and prayers. When ever you have a chance please update us.

Sending my love!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-06-2009, 03:11 PM   #3
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Re: vickie h update

Vickie is on her way to Idaho for treatment number 2. In two weeks time, after her first treatment, she was able to remove all her bandages. Her bleeding has completely stopped and she is almost off the pain meds. Her tumors are shrinking already and some are drying up. She has had a lot of fatigue and a bit of blue days but so far, so good. She will be posting soon when she returns home but she wanted me to tell you all how much she misses you and loves you. She has literally gone from the clutches of Hospice care to this trial and the results so far are amazing. Please keep her in your prayers. You are her sisters and she values your friendship and love. You are always in her heart.
Thank you for your support,
Cap
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