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07-09-2009, 07:54 PM
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#61
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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(((Eric))), I am so very sorry to read of Caryn's passing. You and your children have my sympathy and wishes for peace and strength in the days ahead.
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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07-09-2009, 08:15 PM
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#62
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Eric
My heart is breaking for you. Caryn was a courgeous fighter with you at her side. I am so sorry. You and the children are in my heart and in my prayers.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-09-2009, 08:36 PM
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#63
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Guest
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So sorry. It's been awhile since I've checked in. Thanks for all your posts. Bev
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07-09-2009, 11:58 PM
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#64
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Oh Eric, my heart goes out to you and your family. What a battle she and you fought! Her body may have passed but her spirit must be as strong and free as ever. May her love continue to grow within you forever and ever.
I am so glad you are here with us. You are one of us and we are part of you!
Much aloha,
Maryanne (HarrieCanarie)
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-10-2009, 01:00 AM
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#65
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I am so sorry Eric. Prayers being sent to you and your family.
Karen
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07-10-2009, 06:02 AM
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#66
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Caryn was blessed with a good husband. Your children are blessed with a caring father. I am so sad that Caryn couldn't "make old bones." Please take care of yourself during this difficult time.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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07-10-2009, 07:53 AM
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#67
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Eric:
Your courage through all of this tremendous difficulty has been just amazing. You inspire all of us. I am so sorry for your loss.
Please know that Caryn, your children, your family, and you are in our hearts, thoughts, and prayers.
Lee
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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07-10-2009, 08:03 AM
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#68
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Senior Member
Join Date: Feb 2006
Posts: 437
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Eric, I am so sorry fo the loss of your precious Caryn. I will keep you and your children in my prayers. I pray that the happier memories of Caryn will comfort you through these difficult days.
There is a blessing in that Caryn had you and your love and knew her children would be cherished by their loving father in her absence.
God Bless.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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07-10-2009, 08:20 AM
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#69
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i am so sorry to hear this. i am sending lots of prayers for you and your family and hugs for them kids. god bless all of you!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-10-2009, 09:12 AM
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#70
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Oh, Eric, my heart breaks again for another of our dear "family" and her family. Every day that we manage to eke our once the dreaded cancer word enters our lives is indeed a miracle. Your lives were filled with many miracles. Caryn, and your whole family, are troopers in this long war. Thank you for sharing your lives with us. I hope you will keep in touch through this next difficult phase of things. Much love, Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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07-10-2009, 12:06 PM
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#71
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Eric,
I am so sorry to read this. I will be praying for you and your family.
Amelia
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07-10-2009, 07:13 PM
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#72
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Eric,
My heart breaks for you and your family. I send loving thoughts and prayers out to all of you, and to Caryn that she enjoys love and peace as a true Angel watching over all of you.
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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07-10-2009, 08:49 PM
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#73
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Eric,
Your devotion and love for Caryn was a special gift.
May you and your children find peace and comfort during this difficult time. My thoughts and prayers are with you and your family. I am so sorry for your loss.
Sadly,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-11-2009, 12:10 PM
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#74
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Senior Member
Join Date: Sep 2005
Posts: 161
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I'm very sorry to hear about Caryn.
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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07-11-2009, 01:10 PM
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#75
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Senior Member
Join Date: Jun 2007
Posts: 216
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Eric,
I just do not know what to say except I am so sad for you and your lovely family losing Caryn.
I wished I had known her .
Janie
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07-11-2009, 05:56 PM
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#76
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Senior Member
Join Date: Oct 2008
Location: Detroit, MI
Posts: 205
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God bless you, Eric
Eric-
My heart just broke to read your news. Please know how sorry I am. How very tragic and I am so sorry. Really, words escape me.
I am praying for you and your children...and weeping for your loss of Caryn.
Maureen
__________________
Maureen
My loves
IDC & DCIS, HER2+++ Diagnosis: October 1, 2008 - Tumor: 6.8 centimeters, never showed on mammograms
- ER-/PR-
- November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
- Stage IIIc
- Lapatinib Clinical Trial start: November, 2008
- Surgery: May 5, 2009
- Started Herceptin: May 19, 2009
- Started Radiation (33 rounds): June 10, 2009
- September 2009: Moved to Michigan to be closer to family
- 12/09 - still on Herceptin until May 2010
- August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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07-12-2009, 03:56 PM
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#77
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Senior Member
Join Date: Jan 2008
Posts: 154
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Eric,
My thoughts and prayers are with you and your family. I'm so sorry for your loss. Please hang in there. Better days are ahead...
Doug
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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07-12-2009, 04:43 PM
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#78
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Eric,
So sorry for you and your family for your loss. Many people have shared many special words with you and I support what they have said and hope you recover.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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07-12-2009, 07:56 PM
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#79
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Eric,
I was so saddened to read this news. You were a wonderful loving support to Caryn and so many people here. Your children will help you make it through as you will help them. They are fortunate to have such a loving daddy. Thinking about you.
Ruth
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07-12-2009, 09:01 PM
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#80
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Senior Member
Join Date: May 2006
Posts: 46
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Eric,
God bless you both -- you have been inspiring for us. I'm so sorry.
-Gabrielle
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