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Old 09-05-2009, 08:42 AM   #21
Midwest Alice
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Location: Southern Indiana
Posts: 455
Re: 4 years ago

Hey Lexi, Great news and thanks for the post. You guys give us newbies great hope. Sending a big hug
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 09-06-2009, 06:18 AM   #22
Ruth
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Location: Watkinsville, Georgia
Posts: 356
Re: 4 years ago

Congrats Lexi!
You are such a sweetie and inspiration.
Hugs ~ Ruth
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 09-06-2009, 08:46 AM   #23
Leslie304
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Location: Hunterdon Cty, New Jersey
Posts: 51
Congrats

Hi Lexi,
Congratulations on reaching this happy milestone! You were one of the first I spoke with when I first posted after dx. I remember how important it was for me to read your words of encouragement and to gain strength and courage from them. Together we are stronger and smarter and that is what this site is all about! I have really appreciated all my loving, giving sisters here and I hope to join you as an encouraging voice to others newly dxd someday. I'm only 5 months post dx and fighting this fight but I'm hanging in there and I WILL reach the 4 year mark and beyond with all of you!!
Love, Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 09-06-2009, 01:36 PM   #24
lkc Gumby
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Posts: 437
Re: 4 years ago

Hi Lexi,
happy happy 4th. I am just abit ahead of you and remember you well in " the early days"
We are surely blessed.
Enjoy!
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Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 09-07-2009, 07:50 AM   #25
juanita
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Location: indianapolis, indiana
Posts: 1,544
Re: 4 years ago

congratulations!!!!!
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 09-07-2009, 09:46 AM   #26
penelope
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Posts: 153
Re: 4 years ago

Yea Lexi,
I was thinking of you! I am also at 4 years in June. I turn 40 in October, a birthday I really did not think that I would see.

Congrats....hope you treat yourself to a really nice dinner out with the hubby and kids!
Penelope
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Old 09-07-2009, 11:13 AM   #27
janieR
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Posts: 216
Re: 4 years ago

Lexi,

Many congratulations, what a happy day for you . My 4th will be 28th February next year and I never thought I would be here now but I intend to be there on that date!

Best wishes.

Janie
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Old 09-07-2009, 03:43 PM   #28
Patb
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Re: 4 years ago

I'm with everyone else just a little late in
saying many congratulations and you just
keep on going. Good news !!!
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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