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Old 11-06-2007, 02:34 PM   #21
hutchibk
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I like your style Grace. I could definitely drink the stuff. Yummy!
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 11-06-2007, 06:19 PM   #22
Faith in Him
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Are all olive oils created the same? Is there a certain one that I should purchase. I'm going to try the Tbs a day thing.

Thanks
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 11-06-2007, 08:23 PM   #23
TSund
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Can someone elucidate (or speculate) again re: ER+, flax oil vs flax seed, etc.

THX
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Terri, spouse of Ruth, Dallas/Ft. Worth area
Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
NOW is the time to appreciate life to the fullest.
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Old 11-08-2007, 01:18 AM   #24
R.B.
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RE flax seed this may help. There are more previous discussions on this topic which may help.


http://her2support.org/vbulletin/sho...ight=flax+seed
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Old 11-08-2007, 07:24 AM   #25
Grace
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Re: Are all olive oils created the same?

When we were living in Italy and praised the olive oil from one region to an Italian living in another region, it was taken as a great insult. Quality of olive oil gets the same respect in Italy as quality of wine does in France. If you develop a taste for good olive oil, you'll never again buy the commercial brands you find sitting on grocery shelves for months and years. Whether they all have the same health benefits is a question I can't answer but they definitely don't have the same taste benefits.

Since returning from Italy, we've found that the oils that we used in Italy are too expensive but we've found some excellent ones from Turkey and Greece, and Spain. Color and age are a good marker. Always purchase extra virgin with a deep green color and never buy oils that have been sitting on the shelf for months. Specialty stores usually carry some good brands.

A good friend from Italy is a writer and tour guide in Assisi. Anne is originally from Wisconsin but married an Italian shortly after college and has been living in rural Umbria for close to thirty years. She gives cooking lessons in the U.S. every February and March. She has an article on the ritual of picking olives on her website: annesitaly, under section on Memories of Rural Life. You might enjoy reading it. She also has some excellent recipes posted on her site.
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Old 11-08-2007, 10:09 AM   #26
dlaxague
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Going with the "probably can't hurt, might help" approach, using these oils makes some sense. But there's not any evidence that eating them can have the same effect on cancer cells as is seen in a lab, when they bathe a cancer cell in whatever substance is being studied. I agree with RB's cautions on this. Swallowing something is a LONG way from knowing that it's getting to a cancer cell in any significant (or diffferent) amount. Especially when we're talking of things that are already maintained by our body with multiple methods of control, and that can be formulated by our body from other substances.

But as long as it's relatively inexpensive and has little chance of causing harm, plus it gives us that illusion of control that we do love - why not?

Do you think that we'll ever have really good answers to all of the dietary questions? I wish that could happen, but I'm not very confident that it will. There are just so many complexities, and it's nearly impossible to do any kind of long-term dietary study because we do eat so many things that could be confounders to what's being looked at. Plus each body handles food ingredients differently - it's not just what is ingested but a very complex interplay of enzymes and organs regulating levels, again different in each body.

I think the only thing that we can say for sure is that it's prudent to avoid food that has been produced with pesticides, hormone supplements, and antibiotics. It's best to eat everything in moderation, and to limit simple carbs (diabetes issue, which affects many other issues). And exercise can make a big difference.

This is a little OT, but has anyone read "The Omnivore's Dilemma", by Michael Pollan? Fascinating, about many different aspects of what we eat. Not a "diet" book at all - no mandates nor agenda - just a very interesting and thought-provoking exploration. The sequel is out this month: "In Defense of Food" - I haven't read that one but am eager to do so. Hmm - Amazon says release date is January 2008, but I'm sure I've previously seen November 2007 as its release date.

Debbie Laxague
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Old 11-08-2007, 10:18 AM   #27
dlaxague
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cooking temperature and oil

Jeez, I forgot to include the question that prompted my previous post. I thought that there had been a thread here in the past about the various oils and cooking temperature but I can't find it by searching "temperature cooking oil" (it bounces me back to this thread). Does anyone have a good source for information on that? Preferably not with actual temperatures, but with more practical information. I don't know how to measure the temperature of the oil I'm sauteing my onions and garlic in, for example. I do know that stir-frying with full heat is too hot for olive oil. But sauteing's okay, right? And are the benefits equal when it's used in cooking vs. uncooked, as on bread or salad?

We have pretty decanters of olive oil and Bragg's apple cider vinegar on our table and that's all we use for salads, which we have almost nightly. It surprises us that sometimes we have guests who have never heard of this kind of salad dressing.

Debbie Laxague
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Old 11-08-2007, 10:33 AM   #28
Senorina
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Post ER+ and Flax Seed Oil

I was told to go on Tamoxifen but decided to go on Flax Seed Oil instead. From all the research I did on Flax Seed, it naturally binds the Estrogen, which is what Tamoxifen is meant to do. Apparently, it is the Lignans in the Flax Seed that does it. Every time I found found something on Flax Seed Oil related to BC, I read good things. I now drink a TBS every evening of Barlean's Flax Seed Oil (Highest Lignan).

I take my TBS straight, since there really isn't an aftertaste. It's worth it.

Has anyone heard anything differently on this? I want to be kept up-to-date.
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Old 01-15-2008, 04:14 PM   #29
R.B.
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I have not looked into this in detail as I am a bit busy at the moment. Here are a few general thoughts.

Lawyers in grey suits and a quest for identity rather than cancer is my burden in a case to be heard before the Lord Chief Justice in the UK next week - so please wish me luck.

The trial looks like it used pure GLA, but I would have to check.

GLA is only about 10% of primrose oil. Much of the rest of primrose oil is Omega Six.

GLA is the first step up the conversion ladder from the mother Omega 6. (Sorry rushing I put Omega 3 last night which is plain wrong. I have not idea where that came from - my mind was on other things. RB)

GLA is either used to make more Omega six long chain fat (BAD) which makes the Omega 6 inflammatory chemicals

OR to fuel an alternate GLA based chemical cascade which is less aggressive than the primary Omega Six called the series 1 pathway.

So as usual it is not straight forward and not directly comparable to primrose oil. Borage and blackcurrant have higher GLA. Work out the amount of Omega six included and factor it into your intake balance.

IF the body is converting fats well, what is the improvement available from GLA is a question that needs asking.

IF a choice between Fish oil or GLA - fish oil every time

RB
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