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12-26-2007, 05:42 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Period back...after 32 months
I know, I know, dumb question, but just want to make sure as I was TOTALLY freaked out (not only that, but this summer threw away all my "extra" girl products and MERRY CHRISTMAS, my "friend" visited after chemo induced chemopause in 4/05...and of course no stores were open). Being that I was ER-/PR- am I not to be concerned about my period returning?
Rhonda
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Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-26-2007, 06:31 PM
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#2
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Senior Member
Join Date: Oct 2005
Posts: 823
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Oh No Rhonda. I keep wondering if mine will return. I surely hope not, since all of my blood work has clearly stated I am in full blown menopause.
But I guess we never know.
I don't have an answer for the ER/PR neg. question, but would be intrested in seeing the answers, I am ER/PR neg as well.
Sorry no stores were open.
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Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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12-27-2007, 02:40 PM
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#3
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Senior Member
Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
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I didn't want mine back either.....
I had my first period a couple of weeks ago after not having one for 1 1/2yr. I was bothered by it just because I thought I was done with that part of my life. I am now 43yrs old. I am er-pr- also, no nodes involved. My onc told me it could come back at anytime. I hope that helps a little
<!-- / message --><!-- sig -->__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
<!-- / sig -->
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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12-27-2007, 04:48 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Rhonda, I am sure that did come as a MAJOR un-expected surprise after all that time.
But I am pretty darned sure er & pr negative's don't take AI's or tamoxifen. I'm sure someone can give you a much more informative reply then mine.  But as far as I know...all you get out of this is your darned period back again to deal with. (Lucky you.) Not! See what happens when you throw things out that you *think* you will *never* need again. I know any time in my life that I FINALLY broke down and tossed something out that I know I will NEVER use again...I end up kicking myself because NOW I could of used it. (That always seems to happen.) I really believe er & pr negatives don't take estrogen blockers. Hang in there...
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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12-28-2007, 06:07 AM
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#5
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Senior Member
Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
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Hi rhonda, It also took a long time for me to get my period back. Both my onc and gyno have said that because I am er/pr - , no worries related to cancer.
I was actually happy to get it back. It helped me to feel "normal" again, and sex is back to what it was before I was diagnosed.
the only bad thing is I realized I will have to go through menopause twice!
Laurie
Diagnosed 3/05 at age 37
stage 2b
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12-28-2007, 06:43 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Hi Rhonda-
I am only ER+ 10% and PR-
Even with my low ER+ status, it has never been sufficiently positive to get on Tamoxifen nor will it be sufficient for Arimidex. My onc believes a higher ER+ would warrant hormonals and AI's but with mine so low, the benefits are barely worth it.
I also know that many oncs state that the tamox and Arimidex can't hurt even if one is totally ER- PR-... but common sense just says that if you know it won't help then why take it ?
So, to answer your question, being ER-/PR- keeps you off any additional drugs...
My period came back 2 yrs after chemo and with a vengeance ! I was scared I had other abnormal issues going on and went to get a vaginal ultrasound, a endometrial biopsy (ouch) and nothing was wrong. I am back to having regular periods and I am fine with it. It tells me that my body has recovered ... and it seems, my dear, so has yours !
Maria
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12-28-2007, 12:47 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
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Rhonda ~ my period came back after 2 years (Pregnancy, nursing, diagnosis, then chemo pause and period again). My doctors had no concern (am ER/PR-) and have had my period now for almost 4 years with no problems. Even suggested I could go for #4 child if I wanted to. It is different that I have way more PMS but other than that same old stuff!
Hugs ~ Ruth
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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