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Old 07-13-2011, 04:10 PM   #1
Chelee
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Re: GEMZAR...any tips from those who have had it?

Hi Shelia,
I've never been on Gemzar. However my Mother had advanced lung cancer and was on it for a while. She was 77 yrs old at the time and I was amazed--she handled it quite well. She had very few SE's from it. She did have mild nausea for a few days...but not bad. It did affect her appetite a little bit...but ate well regardless. Other then that it seemed to be a very tolerable chemo to do. She did have some fatigue a few days but it would pass. Her hair gradually started thinning out very slowly! We kept thinking maybe she wouldn't lose it all? She had to have WBR--had she not had that I think it might of just thinned out a bit? My Mother had other health issues so I was really worried about her starting chemo. Over all she just did great on Gemzar. So I don't think you of all ppl will have many problems? At least I hope not. I hope it kicks butt on your cancer and causes you little to no problems at all.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 07-13-2011, 09:12 PM   #2
Jackie07
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Re: GEMZAR...any tips from those who have had it?

Darlene Denise also has had Gemzar.

11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
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Old 07-14-2011, 01:43 AM   #3
Delaney
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Red face Re: GEMZAR...any tips from those who have had it?

Hi Sheila,
I've been on Gemzar since March 14 this year. I hate the red face but thankfully it goes after a day or so. The fluid retention is becoming a problem now, I was ok up to this week, so I must do a search and see what can be done. Gemzar is not affecting my hair, thats growing back after wbr. My appetite isnt great but I eat when I can. Hopefully someone else will have some good tips. Hope this chemo works well for you.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 07-14-2011, 01:48 AM   #4
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Re: GEMZAR...any tips from those who have had it?

I never have Decadron with Abraxane even though it is standardly prescribed. I agree it is best avoided if possible. It turns me into an impulsive and agitated monster. My friend is on Gemzar for ovarian cancer and her hair has thinned but is still looking good with judicious styling. I hope you cope ok with the weekly schedule. It certainly is an impost on your precious time. All the best
Trish
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