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07-26-2007, 06:52 PM
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#21
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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That a girl....Yellow isn't your color anyway....
It is alwaysssssssssss so good to hear from you.
Sending you a big hug!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-26-2007, 06:57 PM
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#22
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Congrats!
Dear Maryann: I was wondering about you, am so glad to hear you are coming back again. We all have missed you and please do not stay away too long, we're worry about you. God Bless you...You are a true miracle.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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07-26-2007, 07:29 PM
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#23
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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There is a balloon fest in my town this weekend, when I see them flying I will think of your strength and courage. THANKS FOR THE UPDATE.
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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07-26-2007, 07:51 PM
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#24
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Maryanne. wow! I was worried that we hadn't heard anything lately. I'm glad things are getting better. I'm curious, as I hate heights, what's the difference between a 5 minute ballon ride and a "real" one? Around the world? Just curious.
Enjoy your weekend. BB
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07-26-2007, 08:35 PM
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#25
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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Hi MaryAnne,
So good to hear from you and that you are doing better. It must feel wonderful to be out of the hospital and on the way to getting stronger. Enjoy your balloon ride, you deserve it! You are always such an inspiration, I love seeing your posts.
Hugs,
Patricia
__________________
age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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07-26-2007, 09:23 PM
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#26
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Hi MaryAnn,
It is good to hear from you and GREAT! to hear you are doing fun things with your life.
I just completed WBR and can understand some of the fatigue you are experiencing. This is the most tired I have ever been in my life and I will give most of the credit to that little green pill, decedron. I'm down from a full dose every four hours to 1/2 dose once a day for a week, then 1/2 dose alternate days for 2 weeks, then I'm done. They really take care to wean you off steroids.
I could not believe how big my feet swelled in the beginning of my treatment. It's no onder I couldn't walk. My legs probably weighed 150lbs. each.
I met a woman who had lymphoma treated with a transplant and was weak as a new born kitten. Does that ever get better? Do you remain on rejection meds the rest of you life?
God Bless has truly blessed you with the drive and hope to continue on. When my friend told me some of the details, I didn't think I wanted to do that. But we never really know what we would do when face with any situation.
I'm happy to tell you that I have another friend you had leukemia in the early 90's and continues to live her life to the fullest, free from disease. Her 2 little daughters were infants and are now in college.
Keep us posted
Love, Lu Ann
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07-27-2007, 07:16 AM
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#27
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Mary Ann , it is the women who have gone before me that I can draw strength and hope from. You are so perfectly one of them. I am not familiar with your earlier posts but you sound incerdible. It reminds me to grab on to the present and enjoy the ride. Thank you. ride high!!!
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07-27-2007, 08:17 AM
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#28
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Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
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Mary Ann, you are just great. Such an inspiration to the rest of us Her2 girls. I am so happy for you. I pray you will continue to improve and get back to your old self 100%.
Linda
S. Mississippi
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
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07-27-2007, 07:31 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Maryanne,
So good to hear from you and find your joy for life goes on and on. You continue to be a shining example of LIFE! Always an inspiration!
________
DEPAKOTE LAWSUIT SETTLEMENTS
Last edited by sassy; 08-22-2011 at 09:24 AM..
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07-27-2007, 09:50 PM
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#30
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Senior Member
Join Date: Mar 2006
Posts: 78
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Balloon ride, concerts, new outfit--you deserve it all. You have been an inspiration for us and a wealth of knowledge. Thanks for the update. I would love to "hire" you to help me get organized and all the loose ends tied up. You are in my prayers for continued gains in lowering and maintaining your liver test results. You truly are living each day to the fullest. God bless you.
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
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07-28-2007, 05:55 AM
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#31
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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The difference between a "real ride" and a 15 minute ride is a few hundred dollars. The 15 minute ride is tethered to the groud and you just go up and float for a bit....the real ride goes for and hour or so which ever way the wind blows....Either way, I'll be happy (happier with all the cash in MY pocket)!
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-28-2007, 05:58 AM
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#32
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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RB - I haven't forgotten my omega's! I have to be careful about the amout of pills I intake. I had to stop all the vitamins/minerals and what not's with the bone marrow transplan. Everything I can put back naturally, I do. I love avacados and salmon. Eating all the right oils and seeds...just trying to do the best I can for this tired body. Thanks for the reminder.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-28-2007, 06:02 AM
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#33
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Thank you to everybody for caring and taking the time to post! It just never ceases to amaze me how many people care. Got to go get ready for our trip today. I'll take some pictures and send them to Joe if my daughter let's me (her camera - got to get my own). Hopefully, she will be in a "normal" mood and not the "16" year old mood....I think it will be a great day!! Love and prayers to you all....
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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07-30-2007, 09:17 AM
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#34
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Hello Mary Ann,
I always worry when I don't hear from you and your posts are so inspiring and courageous.
I hope you're keeping a diary.
Way to go!
love and hugs
sarah
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07-30-2007, 11:22 AM
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#35
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Senior Member
Join Date: Aug 2006
Posts: 492
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Good to hear form you Mary Anne. I have an acquaintence that just finished her initial therapy for AML. She is "cancer free", but very tired.
I hope you feel joy when you are up, up and away in your balloon!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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07-30-2007, 11:33 AM
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#36
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Wow, what an amazing story! You are truly an inspiration! It just proves to me how important it is to dig in and not give up... even when we start to turn yellow and glow green! LOL. You are amazing. Hope you enjoyed Mohegan Sun. Def Leppard are still rockin', but I saw Styx once years ago and that was enough!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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