Trial Scan Nirvana:)
HI friends,
I hesitated to post this here, in the presence of so many of our friends struggling right now...
On the other hand there is nobody else who could fully appreciate this piece of GOOD news! A little more hope in the world.
The short, answering machine version from my onc nurse:
"Echo looks great, Pet/CT looks great...let me read my favorite part...No evidence of metabolically active recurrent or metastatic cancer"
T-DM! (yes, I'm replacing the "1" with an exclamation point from now on!) has been a great drug for me, well worth the freaky beetjuice and carrot salad diet to keep my liver enzymes in treatable range.
I so hope that it will be available to more people SOON because when it works, it can work very well.
Of course I'm overjoyed to renew my license to breathe for another few months...
This time I had the added excitement of having had the Pet/CT denied by my insurance co as "not medically necessary" based on recent history of scans and labs not showing...anything! So that was a good news/bad news moment. Fortunately they were able to work that out!
Truly, clinical trial nirvana!
By the way, you probably can't see it but my new avatar pic is of a tree growing from solid rock in my favorite place in Yosemite...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
Last edited by chrisy; 07-01-2009 at 08:25 PM..
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