 |
|
10-19-2008, 05:12 PM
|
#1
|
|
Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
|
Thoughts on the movie Living Proof?
I was wondering what everyone thought of the movie last night? We don't have cable but are on the road in the RV and were able to see it. Talking to Christine, I knew there was a surprise in store for us. How wonderful to see her and then both our fearless leaders on the commercial. I can not put into words the gratitude I have for Christine and Joe. I look back over the last 2 years of my life and can't believe the knowledge I have gained from this site. I am so grateful for the friendships I have found here. I now have a true sense of sisterhood!
Now onto the movie. I was really amazed at all that went into getting Herceptin available to us. I am indebted to Dr. Salmon and all our sisters that went through the early trails for us. I see Herceptin as our miracle treatment.
I was unable to record the movie last night but ask a friend at home to record it for me. If available I would love to share it with my sisters outside the states that were unable to see it. I went to sleep last night with tears in my eyes and a smile on face. We all should be grateful and feel blessed to have Herceptin available to us. Miracles do happen!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
Last edited by DonnaD; 10-20-2008 at 04:36 AM..
|
|
|
|
10-19-2008, 06:09 PM
|
#2
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
I am in the middle of watching it right now... it is kicking my butt emotionally. It's weird to watch "our lives" on TV, but it is making me weirdly proud of being HER2 +... I am mad at Genentech right now, but I know I won't be by the end of the movie. Can't wait to see Joe and Christine.
Check this out and how absurd this is... http://www.calendarlive.com/tv/cl-et...0,104262.story
Oops, it's back on. More later.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
|
10-19-2008, 06:12 PM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
I had read the book shortly after being diagnosed, but seeing it portrayed in the movie really made me appreciate the true miracle that we have benefited from. I can't help but think that many of us would not be here today, if not for the work of Dr. Slamon and the people who helped to finance his research. The movie is a good story for anyone--but for us--it is the story of our LIVES.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
|
10-19-2008, 06:36 PM
|
#4
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
Just saw Joe and Chris - now I can't stop crying. I love you guys!
It's on again tomorrow (Monday) night at 9 ET...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
|
10-19-2008, 07:27 PM
|
#5
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Thanks Brenda for the time it's on tomorrow. We DVR'd it and watched it last night. UNFORTUNATELY, since it was DVR'd we fast forwarded it through the commercials so I did not get to see the special commercial. So, I now have the DVR set up for tomorrow night so I can watch the commercials.
I loved the movie and was very emotional through out it also. My husband loved it too and today when we went to Walgreen's and I was looking for some fingernail polish my husband said "buy Revlon!"
Anyway, it was awesome and I had no idea of all that went into getting this miracle drug approved. I, too, feel indebted to Dr. Slamon, Lily "T" and Revlon for all their unselfishness. What a diligent, loving, compassionate, caring soul Dr. Slamon is. His wife as well.
Truly I can't say enough about what I watched and how I feel. I feel blessed - I feel lucky - I feel grateful and I am so happy I am alive and well.
Thank you God for sending us a Dr. Slamon.....We are thankful.
Hugs to all my "sisters"
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
10-19-2008, 09:01 PM
|
#6
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
When I had my pic taken in front of the Yew Tree (Taxol tree) in Monte Carlo this summer (that was given to the principality on Monaco by Lily and the Tartikoff foundation for their ongoing support of breast cancer research) - I had NO IDEA that she was instrumental in the Herceptin research. I will cherish my branch from that Yew Tree even more than I already do...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
|
10-19-2008, 09:19 PM
|
#7
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Oh my! Here I am running over to this site during the commercials. I didn't realize the Joe and Christine will be on the commercial! Guess I will stick by the tv!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
10-19-2008, 09:34 PM
|
#8
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
It is a very profound movie!! Tears and gratitude. I never realized all that went into having the herceptin approved and available for us now. (still not over, 20 min to go...)
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
10-19-2008, 09:35 PM
|
#9
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
I just saw you two on the commercial!!!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
10-19-2008, 09:44 PM
|
#10
|
|
Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
|
The movie is based on HER2 - The Making of Herceptin by Robert Bazel. It is still available on Amazon both new and used. I highly recommend it for everyone.
http://www.amazon.com/Her-2-Making-H...4477479&sr=1-1
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
|
|
|
|
|
10-19-2008, 10:14 PM
|
#11
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
What it meant long before the movie ...
My thoughts went on the other thread, but more appropriate here:
That movie touched a nerve deep within me.
My hubby had planned to watch it with me as I have been "promo-ing" it to him for a while now.
So, we sat together on a comfy chair large enough to hold both of us, watching till the end.
Slight digression: In Jan. of 2002, when I was diagnosed with raging mets to liver, I did not know WHAT to do with myself. I did not know if I would live or die. I had not found this support group or any other that could help me know anything, except "the worst." While wandering in a large local book store I ran across a used copy of the making of Herceptin book. This is where I began to see that maybe the treatment I was on might work as it included Herceptin. I tried to channel those women for whom it had worked. I tried to understand the impossible! I tried to believe and have the same degree of faith that Dr. Slamon and his staff had in pushing the drug through development. I used guided imagery to help me in these efforts. I concentrated deeply before going to sleep each night. Perhaps trying to program my body to accept these drugs and fight the tumors. This was a very emotional time for me.
That book gave me some sense that I may have at least a small degree of power in a situation where I felt utterly powerless. But it still felt like Russian roulette.
I began to feel that it was practically a duty to Dr. Slamon and Genentech to be a responder and be a sort of standard bearer for others like me. Why not me???
Thus I feel I owe a lot to Robert Bazell for even writing the story, warts and all. I feel I owe a lot to Lily Tartikoff for believing in Dr. Slamon's idea of targeted antibody therapy. Dr. Slamon comes last but certainly NOT least. I have met him on 4 occasions (in public) and always thank him as best I can without embarrassing us both. I always let him know that I am "still" a living proof that he could be right. (Yes, I did use those words.)
Thus I had a real mare's nest of feelings to deal with even before sitting down to the movie. My husband had forgotten the passages I had read to him those years ago from the book. It became refreshed to him with tons more meaning. Now he really has an even better understanding of how lucky we are that I have managed as well for as long, in spite of all the setbacks.
Knowing Dr. Slamon and having heard him speak several times, I thought that Harry Connick, Jr. played a great interpretation of the good doctor. Have met Mrs. Slamon as well and her character was also well played.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 10-20-2008 at 10:37 AM..
|
|
|
|
|
10-20-2008, 05:27 AM
|
#12
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
What an emotional and humbling show to watch...after reading the book, it was so meaningful, and what a gift to see the commercial of Joe & Christine right in the middle of the show.....to Dr. Slamon, all the women who trialed Herceptin, all who fought hard for Her2 research and to Joe and Christine who are our advocates every single day, we owe a world of gratitude and thanks. We truly would not be here without them.
When I was diagnosed in 2002, I was stage 1, and herceptin was only available to Stage IV Metastatic....so I had to wait to get mets to qualify. How lucky the women are today that get it as firstline treatment ! It has been the backbone of my treatment (with and without chemo) for 5 years, and still going!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
10-20-2008, 06:10 AM
|
#13
|
|
Senior Member
Join Date: Oct 2007
Location: PA
Posts: 27
|
I don't have cable and was unable to see it. Does anyone know if there will be a DVD available at some point? I will try putting it on my Netflix list but if anyone knows of some other eventual source I would be most appreciative.
Update: no listing on Netflix so far (in general, you can put recently released movies on a Netflix wait list for when they are available on DVD).
Anyhow, if anyone has any other ideas, suggestions are welcome. I will try the Lifetime site.
Thanks.
__________________
diagnosed 1/07;
ER+, PR+, HER-2 +;
4.2 cm. invasive ductal carcinoma;
mastectomy 2/07;
SNB negative :-) ;
chemo (AC, followed by Taxol); herceptin scheduled until 6/08 but stopped 11/07 due to LVEF drop)
|
|
|
|
|
10-20-2008, 06:42 AM
|
#14
|
|
Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
|
The best part for me was seeing Christine and Joe in the commercial. I thought it was a decent movie. Don't know if it will win an Emmy, but we'll wait and see.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
|
|
|
|
|
10-20-2008, 06:42 AM
|
#15
|
|
Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
|
Living Proof
I just wanted to say what a remarkable man, a remarkable movie, and BOY oh BOY I must have really, really needed that good Cry on Saturday night. That was a very powerful and moving movie for me to watch.
Love to all of You
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
|
|
|
|
|
10-20-2008, 06:43 AM
|
#16
|
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
I thoroughly enjoyed the movie. I am so thankful for Dr. Slamon's dedication. If it were not for people like him and Lily Tartikoff we would not have this wonderful drug that has saved so many. I was especially surprised to see the commercial with Joe and Christine. I was bouncing up and down and pointing to my partner and saying oOh My God! It's the couple from my support site. I was so excited and my family was looking at me like I had 4 heads. LOL My partner also enjoyed the movie and ordered the book coz it peaked her interest and she wanted to learn even more about her2 and our miracle drug. I will read it too when it comes.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
|
|
10-20-2008, 09:38 AM
|
#17
|
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
I'm feeling tremendously grateful to Dr. Salmon, Lily, Joe, Christine, all the courageous women in the trials and all of you. It also gives me such hope to know Dr. Salmon and Lily (by fundrasing) are still working towards a cure.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
|
|
10-20-2008, 10:58 AM
|
#18
|
|
Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
|
i would love to see this movie, so Donna if you can extend it to us, outside the US that would be great.
i really need to see it. Just p.m me for details..i would be happy to pick up all cost getting to me.
thanks Suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
|
|
|
|
|
10-20-2008, 12:21 PM
|
#19
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
The movie made me very emotional. I gratefully thank Dr. Slamon, Christine, Joe, and all the other ladies who made it possible for me to be able to have Herceptin for my treatment.
Amelia
|
|
|
|
|
10-20-2008, 12:43 PM
|
#20
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
When I finished chemo in 06, my oncologist said I might
get Herceptin if approved for Stage one, it was, I took
it and thank God every day and all the Drs., sisters before me, and the drug companies and supporters that
pushed this through. To have to fight for a drug that is
not available is a scary prospect and I wonder now what
the news is on compasssinate care drugs?
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 05:38 PM.
|
Linear Mode
