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Old 10-11-2013, 11:23 PM   #1
chrislmelb
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Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
Unhappy Re: Rest in peace, Mandamoo.

And more....
StephN, she tried Havalen as her last treatment but began to feel really unwell. This is when she went to hospital and was told if she kept up treatment she would die sooner.
This is a post she put 5th October when i asked after her well being:

I'm ok. Mainly just spending time sitting in my chair in our lovely front room. Quite a few visitors from Qld. I deteriorated quite a bit when I first got home but past couple of days have been better. I am very breathless on exertion and can no longer walk upstairs to my bedroom so we have moved into our spare room downstairs. The home care nurses have visited and will come twice a week to check my symptom management. I have a stool for the shower as I was exhausted standing and yesterday an oxygen converter arrived which I don't really need yet but just in case. I have my appetite back which is a nice feeling as eating gives me strength. I am living in blissful denial saving my energy, knitting, reading, writing, chatting.


A friend (who is having her 50th tonight!) rang her on Wednesday and she was coughing a lot. She and all of us are just so shocked by the suddenness.

I held Amanda in high regard for her extensive knowledge of this horrible disease. Unfortunately here in Oz we aren't up to you in trials etc. Amanda didn't want to waste time with her family(going overseas) to buy a bit more time even tho she had a very aggressive disease.
Thank you Amanda for the time you spent discussing my disease with me and for being such a positive influence.
__________________
Christine

DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva

Last edited by chrislmelb; 10-14-2013 at 12:04 AM..
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Old 10-12-2013, 02:23 AM   #2
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Rest in peace, Mandamoo.

This is such a shock. I am so down. I just cant accept Amanda is gone. My thoughts go to her family and friends. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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