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Old 07-10-2011, 07:06 AM   #1
alk
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Join Date: Jul 2011
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Herceptin/Tykerb for Stage 1

I was diagnosed with Stage 1, HER2 positive (triple positive), last week. The treatment recommended is Herceptin and Tykerb to shrink tumor (2cm). If no progress is made in 6-8 weeks, I will start chemo. I just wondered if anyone had ever heard of this before? Or had this treatment? I know this particular hospital just finished a trial that has not been published yet about this protocol. Just looking for experience....THANKS!
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Old 07-10-2011, 08:56 AM   #2
Jackie07
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Re: Herceptin/Tykerb for Stage 1

Several members have shared their experience of Herceptin/Tykerb in the thread below not long ago:

http://her2support.org/vbulletin/sho...b+trial&page=2
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Last edited by Jackie07; 07-10-2011 at 04:47 PM..
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Old 07-11-2011, 04:34 PM   #3
vlcarr
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Re: Herceptin/Tykerb for Stage 1

I did this combo as a clinical trial--a huge success for me as you can see from my signature. Best of luck to you!
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
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Old 07-11-2011, 05:52 PM   #4
alk
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Re: Herceptin/Tykerb for Stage 1

Thanks for help! I had resigned myself to this decision and was relatively appreciative about it...Well, I went for CT Scan, Bone scan and echo. I wasn't even out of the parking lot when they called to tell me that there were some abnormalities in my liver scan. So back for another MRI on Thurs. before I am suppose to start Herceptin on Friday. Pray that it is nothing.
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