back from doctors

[Joy]

Well, the PET confirmed that there is progression in the liver. She is referrring me to a radiologist for RFA, which I hope will be feasible. Size wise it is, she was just unclear about position. She is also going to call Dr. Geyer in Pittsburgh who pulled together the tykerb/xeloda trials and consult with him regarding what to do when patients progress on this combination. Do we keep the tykerb and add other chemos, do we dump the tykerb and look at completely different regimens? She felt like he would be a good resource. She also is thinking aobut avastin added to t/x or with herceptin and she is looking into the herceptin DM or whatever it is called. She feels that since I am tolerating tykerb and xeloda so well and it has maintained control everywhere else that we should try targeting this breakthrough tumor activity. And then see how it is going after that.

I am also going to see my specialist in Denver again as he is so positive and experienced. He always gives me a boost of confidence. She said we are no where near the crisis point we were a year ago and that this is not life threatening. I asked her how many more bullets I could dodge and she said, "Oh, 100!" She said that I'm stronger than I give myself credit for and there is no doubt that I can get through this. I'm still trying to believe that. Again liver function is good, brain MRI was clear, last mammo was clear, lungs and bone are stable.

Thoughts, comments, success story reminders...I'm open to all of it. Thank you guys so much for your concern and help and support and love and know I share all of that with you-every one of you!

P.S. I know a few people have posted on this, but I'm curious about anyone else. My hair is falling out a little bit on t/x and it really bums me out. Can that stop or does it just continue? Any hints on how to stop it?