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Old 07-14-2010, 07:13 PM   #1
swimangel72
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Re: Changes to my Navelbine & now side affects...

Hi Chelee - sorry I'm a bit late coming to this thread - are you still on Navelbine every two weeks? How was your last PET scan? My first onc put me on Navelbine every two weeks without any pre-meds, and the only GI SE I experienced was diarhea that night and a bit into the next morning. I did experience pain in the infusion arm (my port had gotten infected) so the nurses infused an entire bag of saline along with the Navelbine to help prevent the veins from burning. When I switched to a new onc, without telling me, the nurse gave me an anti-nausea steroid (I think it was Zofran). For the next 3 days I was experienced painful constipation - I took a strong laxative which finally helped on day four. So after that I told the nurses that I didn't need the pre-meds, I'd rather just live with the diarrhea than the awful constipation.

I do hope you're feeling better - and I'm sorry I haven't been around much these days.
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Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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Old 07-14-2010, 09:15 PM   #2
Chelee
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Re: Changes to my Navelbine & now side affects...

Darlene & Kathy, This is an older thread of mine that was brought forward by a "spammer". I noticed it the other day. They were trying to sell software or something...obviously Joe deleted his post which still left my thread here. I am no longer on Navelbine. But Darlene...love the name NavelBIND...boy isn't that the truth!! lol

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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