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Old 12-14-2007, 10:24 PM   #21
MPB
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Location: Minneapolis, MN
Posts: 20
Wink 2 nd infusion

Hi Lily and sisters,

Well I did my 2nd infusion, I did not think it went any better this time then the first time........ My counts where just okay, Pallets was only 66, so that would explain my fagtiuge. So I will get my scans done on 21st of this month and not find out until after Christmas , one year my doc called me on Christmas Eve just to tell me the scan was awesome.. What a guy! So if you all would say a prayer for me I would be so grateful. Also if I don't chat with any of you Merry Christmas and May God's blessings be with each of you and thank you sister's for a year full of sadness, joy, tears,fears and many others. But we are still here fighting the "Fight" and being leaders each other.
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MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.

"Believe in miracles, and watch them happen!"
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Old 12-15-2007, 07:05 AM   #22
lilyecuadorian
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Location: CHARLOTTE NC USA Home town (ECUADOR) South America
Posts: 542
Hi Marcia,
I so sure that you scan are going to be better , on Monday I will have all my results ..so far my MRI for my head is clear clear my Doc said that he can't find the place where was ? witch he said is great ...and my body I think is going to be OK because they did took some blood Friday (I need the blood test before infusion) that means I will still receive so the only reason for stooping is progressing; ....stable is OK or getting small or clear .....just think on our sister Barbara she no longer have bone pain and I sure she will have her results good on Monday ...not to worry much I know is hard hard ..but I going to pray for you too..Marcia your results are going to be great too
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 12-15-2007, 07:21 AM   #23
jones7676
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Location: I live in Christmas, MI - located on the shores of Lake Superior.
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Hi Ladies, please keep posting on your progress. I am praying for good results for both of you. And Lily, I was glad to hear your good news!
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Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 12-15-2007, 09:43 AM   #24
Julie2
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Dear MPB and Lily,

I am confident that you are going to get good results. Praying that it will be a miracle drug for all of you who are on this.

Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 12-15-2007, 05:41 PM   #25
doh2pa
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Location: Chadds Ford, Pa
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Ladies,

I am so pulling for both of you! What trailblazers you are!
I am at a treatment decision point myself and will mention this study to my onc.

Prayers and love coming your way.
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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Old 12-17-2007, 02:02 PM   #26
lilyecuadorian
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Well, My Sisters I went today to my every 3 week visit to my Doctor Limentani ..and finally I get the results ...from the 3 lesion one no longer identified and the remaining 2 lesions diminished in sizes .no evidence of new disease in the abdomen, no on the brain all other parts are normal ...that is after 2 treatment of this trial MC1-MCC ; so my Doctor said that is a great news ...Thanks My Lord first ...so is a great Christmas gift for me and everybody on this group this bring more hope for all of us MERRY CHRISTMAS TO ALL MY SISTERS
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 12-17-2007, 04:12 PM   #27
Julie2
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Posts: 556
Lily,

Congratulations!! I am sure you will reach NED very soon with this drug. Thank you very much for being a pioneer and giving hope to others.

Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 12-17-2007, 06:49 PM   #28
eric
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Lily,

What GREAT news. I'm happy for you and all others that this drug might help.

Thanks for sharing.

Eric
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Old 12-17-2007, 09:53 PM   #29
kareneg
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Talking

Dear Lily,

What wonderful news, I am so happy for you and this looks so promising for all of us too!. Keep up the great work love you!
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 12-18-2007, 03:28 PM   #30
runtolive
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hang in their lily.... you are helping genentech prove this drug works.. keep fighting for everyone.....
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Old 12-21-2007, 02:00 PM   #31
Patrice
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What wonderful news Lily! MPB, I'm hoping that you achieve the same results.

Sending you both prayers and love.

Patrice
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Old 12-28-2007, 03:17 AM   #32
MPB
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Location: Minneapolis, MN
Posts: 20
Hi Ladies!
Well my scans where awesome! The the neck nodes are almost gone, the biggest one is half the size it was no new liver tumors. So it sounds like we are all responding very well to this chemo!!! PTL for he is good and I am so gratefull to all the men and women that keep working to find new cure's for US! So I am off to work and then the 3rd infusion of this chemo. HAPPY NEW YEAR!!! hugs and peace!
__________________
MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.

"Believe in miracles, and watch them happen!"
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Old 12-28-2007, 08:19 AM   #33
lilyecuadorian
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Posts: 542
OH Dear Marsha ...I was waiting for this news .....is great (like my doc said) after second infucion eh eh ...I'm happy for you and us ...and I hope so with your results we get more ladys enrolling on this trial ...Happy new year to everyone !!!!
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 12-28-2007, 10:22 AM   #34
runtolive
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what is the name of the site you are treated at in minnesota..
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Old 12-28-2007, 11:20 AM   #35
MPB
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I am being treated at Piper Breast Center at Abbott Noethwestern if you eant the name of my doctor who is heading the study here PM me.


hugs!
__________________
MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.

"Believe in miracles, and watch them happen!"
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Old 12-28-2007, 12:13 PM   #36
runtolive
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for those interested.. the once a week trial for trastuzumab-dm1 sites in florida..

United States, FloridaFlorida Cancer Care Recruiting Davie, Florida, United States, 33328 Contact: Joel Espinoza 954-262-7606 crc@flcancercare.com Gulfcoast Oncology Associates Recruiting Saint Petersburg, Florida, United States, 33705 Contact: Margie Blasek 727-821-0017 smyers@gulfcoastoncology.com Hem/Onc Assoc - Treasure Coast Recruiting Port St Lucie, Florida, United States, 34952 Contact: Christine Baker-Gerdes 772-408-5159 cgerdes@hemoncfl.com Bay Area Oncology Recruiting Tampa, Florida, United States, 33607 Contact: Julie Hahn 813-875-2300 ext 28 jhahn@bayareaoncology.com
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Old 12-28-2007, 06:20 PM   #37
runtolive
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MPB...have you heard if many others are on the same treatment plan as you..at abbott nw... barb said dana farber already has reached their quota for this trial so if other sites are enrolling well.. the phase 1 portion of the weekly dosing regimen may end soon... then hopefully genentech can begin a pivotal phase 3 trial...and possibly be approved sometime maybe late 2009 or 2010...

hugs back...


run to live.
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Old 01-03-2008, 03:04 AM   #38
MPB
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Location: Minneapolis, MN
Posts: 20
I am not sure I will ask the study nurse if they have any openings?? Are you intersted?
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MPB
IDC in 1996 Stage 3 Grade D 17 pos. nodes
2003 liver mets found HER2 Her/Taxol then did the first trail for Trykerb and Xelosa until 11-07
Six new tumors on neck will be starting the MCC_DM1 trail this week.

"Believe in miracles, and watch them happen!"
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Old 01-03-2008, 07:43 AM   #39
runtolive
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Posts: 210
i am not interested for myself but for all the women who may need this trial to survive but do not have access or the ability to find the trial in their city..

not all doctors are willing to put their patients in study trials.. before its too late..
i only hope brave women like yourself can forge thru this trial, and prove this drug could be the answer to all our prayers...

do you know how many others are in the same trial as you.. genentech should hopefully be able to complete enrollment of this trial within a few months and progress to a full pivotal trial sometime later this year..
run to live
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Old 01-03-2008, 08:21 AM   #40
lilyecuadorian
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Posts: 542
Dear run to live ..in North Carolina we are only 2 and we have space for 5
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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