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Old 09-24-2010, 10:33 AM   #1
bejuce
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Scared that I may have skin mets

Hi everyone,

So yesterday morning in the shower I noticed two little redish spots below my scar line and immediately freaked out thinking the worst (I know, I'm a worrier, worst-case-scenario-preparer by nature). The spots are small, like little freckles, and don't have the appearance or shape of a nodule - more like a little rash or something. They have a slight texture to them and are painless.

I called my surgeon's nurse and asked to come in for my peace of mind. When I saw the surgeon, he comforted me saying he doesn't think it looks like a skin met but because I was so anxious and nervous having all those bad cancer thoughts in my head and thinking about my precious kids, he decided to biopsy the area.

The results won't be ready until most likely Monday, but he said he thinks there's a 80-90 % chance of it being benign. Still, I wanted to share this with you and ask whether anyone has experience with something like this before. I've already done my online research on skin mets and seen the pictures, and from what I've read and seen, they can look like anything. So... Does anyone have any insights to share? Should I stop worrying? I stopped my year of Herceptin already and am just taking Tamoxifen now. I had that side radiated to the max, so what's the likelihood that it could indeed be a skin met?

Thank you so much, you all rock!

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-24-2010, 11:58 AM   #2
Lien
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Re: Scared that I may have skin mets

Hi Marcia,

Ofcourse you are scared! I would be scared too. I'm a bit more relaxed now that I'm 6.5 years out from diagnosis, but when a strange growth emerged on my right nipple (non-bc side) I almost freaked out. My surgeon, nurse practitioner, radiologist and onc assured me that it wasn't cancer, but I worried still. Now, after a watch-and-see period of 6 months, without any discernible changes, I'm beginning to relax.

I'm glad you got a biopsy, as you need to be reassured. I've learnt that an experienced doc usually knows when something is wrong. I'm gradually beginning to trust their gut feeling.

After all, it was a doc's gut feeling that made me choose a lumpectomy for a lump that seemed benign. It wasn't and the doc was right.

Hope this helps a little. Keep yourself busy this weekend and Monday is just a few days away.

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 09-24-2010, 02:04 PM   #3
Chelee
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Re: Scared that I may have skin mets

Marcia,
Anyone that's been dx with bc has these same fears...it's only normal. I've had bilat mastectomies. Every once in a while I will notice a couple red spots just below...and sometimes right along my scar line. What you describe sounds exactly what shows up on me every now and then. (It's only like 2 or 3 dots.) At first it scared me to death...but I know now it's nothing. I have had it checked out & they find nothing. These red spots show up over night..and I now believe it's where the bottom band of my bra rides around my body and aggravates the skin? Also I have the weighted prothesis which sits right there too...or close enough. I just looked and I have 3 little red spots right now on the left side but I know now...they will be gone by tomorrow probably by tomorrow. I'm sure there are alot of changes under our skin after mastectomies. That's a pretty involved surgery...so I don't think it takes much to aggravate the skin in this area. I really believe you your ok...but glad you had it checked out because it's the only way to have peace of mind.

So try not to worry...easier said then done I know. But I know of several gals at my cancer center that deal with this same thing.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-24-2010, 02:32 PM   #4
Becky
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Re: Scared that I may have skin mets

I have a big red splosh on my scarline (nickel size). It gets redder when I shower so when I get out, I really think about it. It showed up after radiation and it never went away. It does bother me that its there just because it IS there. But it has been biopsied and it is nothing. I have had alot of prickly heat rashes too - those really freak you out for sure. It is good to get it checked. Things won't bother you as much as time goes by - Lien was right as I am 6 yrs out and I am more relaxed to "wait and see" for a couple of weeks.

Try and relax and have a nice weekend.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 09-25-2010, 04:01 PM   #5
bejuce
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Re: Scared that I may have skin mets

Thank you all for your support and for being so understanding. My surgeon called me
late afternoon yesterday to tell me that the preliminary pathology results showed that everything is clear and good, so I couldn't be more relieved! I was very happy that he called so I wouldn't have to wait over the weekend.

Thanks again! From now on I will wait a bit before rushing to conclusions.

Enjoy your weekend,

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-25-2010, 04:15 PM   #6
Jackie07
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Re: Scared that I may have skin mets

Marcia,

Thanks for sharing the good news.

I experienced the same anguish when I felt discomfort in the liver area and the doctor ordered an ultrasound following the initial CT scan.

I was so sure that I'd developed liver mets. But it turned out to be harmless hepatic hemangioma.

There was also the 'neck node' scare that turned out to be cervical vertebrae degeneration.

There's nothing wrong to be scared when faced with the unknown. We have to stay vigilant and always seek answers.

Glad you can now relax and enjoy a good weekend...
__________________
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
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IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
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7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
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Old 09-25-2010, 04:48 PM   #7
Lien
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Re: Scared that I may have skin mets

...From now on I will wait a bit before rushing to conclusions.

Oh no you won't! It takes a long time before we can trust our bodies again, if ever.
But if you come to us, we will be here for you.

Your doc is a gem.

Hugs

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 09-25-2010, 05:33 PM   #8
karen z
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Re: Scared that I may have skin mets

Marcia,
Grateful for the good news!
Best,
Karen
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Old 09-25-2010, 06:28 PM   #9
caya
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Re: Scared that I may have skin mets

Thanks for sharing the good news Marcia!!

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 09-26-2010, 11:44 AM   #10
tricia keegan
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Re: Scared that I may have skin mets

So glad to hear your good news Marcia!!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 09-26-2010, 03:38 PM   #11
mmoons
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Re: Scared that I may have skin mets

So so SO happy to hear the good news. Marcia!!! I am telling ya', dealing with the fear is such a significant part of this disease for me. I know we all think the worst at ever turn. Stay strong, stay aware of your body changes.

Thanks for posting the good news! Thinking about you!

Hugs,
Maureen
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Maureen


My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 09-26-2010, 03:50 PM   #12
lexigirl
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Re: Scared that I may have skin mets

VERY good news Marcia!! I'm happy and relieved for you.

Lexi
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Old 09-26-2010, 04:13 PM   #13
krisvell
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Re: Scared that I may have skin mets

Marcia,
WhoHoo! You had good news. I really wish that you didn't have to go thru the worry. I am so happy that everything turned out well.

Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 09-26-2010, 09:25 PM   #14
CDE
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Re: Scared that I may have skin mets

wow great news. Great that things went well for you. nice of the surgeon to let you know so you won't have to worry.
__________________
Caregiver to my wife
32 year old diagnosed with BC
Lump found on left breast with BSE in March 2010
Radiologist told her it was fine,come back in ten years
Gyn told her to see breast specialist
Breast Specialist says it is cancer
Diagnosed July 2010
Lumpectomy in left breast only August 2010

IDC: er-/pr- Her2+++ grade 3 (1.9 cm)
Ki-67 (40%)
DCIS: er10%/pr20% her2- comedonecrosis cribiform high grade (2.2 cm)
(DCIS is attached to IDC;DCIS comprise 67% and IDC 33% )
Angiolymphatic invasion: non identified
0/1 sentinel node positive
1 intrammary node positive
Somewhere between stage 1 and 2
BRCA1/2 Negative
Have one 18 month old daughter
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Old 09-27-2010, 03:25 AM   #15
Ellie F
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Re: Scared that I may have skin mets

Really pleased to hear your good news.

Its' sooooooo hard sometimes living this new reality.

Love Ellie
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Old 09-27-2010, 07:03 AM   #16
ammebarb
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Re: Scared that I may have skin mets

So very glad to hear that you got good news. Hope you had a light hearted weekend.

Barb A.
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Old 09-27-2010, 08:45 AM   #17
Shobha
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Re: Scared that I may have skin mets

Hi Marcia,

Just logged in and saw you post. So very happy to hear that the rash is absolutely nothing to be worried about.

The first year after the treatment ends was the most difficult for me. I ran to the doctors almost every two weeks. I had a similar experience and my biopsy also came back clean.

In the first year, being so afraid of a re-occurrence, I had abdominal PET/CT scan, colonoscopy, upper GI endoscopy, brain MRI, lower back MRI...Every time there was a pain, a pimple or something else, I would rush to the doctors. It is so natural, especially, with our little kids, the stakes are so high.

We can all understand what you are going through. You are always in my thoughts and prayers.

hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 09-27-2010, 09:44 AM   #18
bejuce
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Re: Scared that I may have skin mets

Thank you all for your support!!! Looks like I'm not the only one to go through these anxiety-ridden "cancer is back" attacks. I'm so glad to be a part of this community, you help me so much to stay strong and upbeat.

What I found difficult last Thursday when I was waiting to get checked was how alone I felt. I didn't want to call my parents to scare them, my husband was busy at work and didn't seem to want to hear any bad news, my friends were out and about busy with their own lives, and all I could think of was how I was going to get out of there in time to pick up my kids from school without letting them feel how anxious and stressed I was.

Sometimes we just need an outlet and talk to someone who understands, and you gals here are the best.

Thank you all for forming this community and making me feel a part of it,

Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 09-27-2010, 11:40 AM   #19
Yorkiegirl
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Re: Scared that I may have skin mets

I'm so glad that news is good. Now jusy try and relax. I know easier said than done at times.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 09-27-2010, 06:31 PM   #20
Laurel
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Re: Scared that I may have skin mets

Doin' the happy dance, Marcia!
__________________

Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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