 |
08-03-2006, 07:47 PM
|
#1
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
thanks to Angel Flights Network...
I finally got my appointment to meet/consult with the transplant doctor in Buffalo next Thursday. I contacted Corporate Angel Network, but they could not help me - no flights going where I need to go. Then I contacted Angel Flights Network, and they are arranging for a private plane/pilot to fly me and my mom to Buffalo for the day (for free). The plane will pick me up at a smaller airport just 15 minutes away from my home (Kennedy is over an hour away) and fly me to the airport in Buffalo just a few miles away. They contacted my doctor today and things are rolling. I am very excited to be getting on with things. My leukemia doctor is arranging to admit me (hopefully) the next day so that I can get the next round of chemo over with. I hate that I will be away from home for a bit again, but this time may not be as long. Because I am in remission and I am such a good patient, I was told that they may let me do a lot of my recouping at home as long as I come in to the office three times a week..how cool is that??
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
|
08-03-2006, 09:29 PM
|
#2
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
MaryAnn, I am so happy to hear things are moving ahead as planned. That is just wonderful to hear about these networks that will help out and fly people where they need to for free. (God bless these people!)
That is awesome that they are thinking of letting you spend some time at home as long as you check in with them a few times a week. Wow...that has to be REALLY EXCITING news to you. Everyone hates to be stuck in the hospital...so that alone is GREAT. 
Wishing you well...stay strong and hang in there. May God bless you.
Sending warm & healing thoughts.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
08-04-2006, 05:23 AM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
|
MaryAnn-
That's great news, both about the corporate do-gooders, and your treatment plan - keep us posted on developments...
Shell
|
|
|
|
|
08-04-2006, 07:25 AM
|
#4
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
MaryAnn,
Glad to hear that Angel Flights was able to help you get to Buffalo. I know that your next round of chemo will go smoothly and that you will remain in remission. You're in my thoughts and prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
08-04-2006, 08:16 AM
|
#5
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Maryanne, your updates are so encouraging, thanks for taking the time to keep us in the loop. You're in my thoughts and prayers 
<3 Lolly` |
|
|
|
|
08-05-2006, 09:09 AM
|
#6
|
|
Member
Join Date: Jun 2006
Posts: 12
|
MaryAnn,
Glad to hear you are being able to get this treatment. We will be praying for you.
LynnC
|
|
|
|
|
08-05-2006, 09:33 AM
|
#7
|
|
Deceased
Join Date: Mar 2006
Location: Virginia
Posts: 113
|
thanks to Angel Flights Network...
MaryAnn,
I am so excited and thrilled to hear your good news. It is simply wonderful to know that there are networks out there like Angel Flights.
I know you will do great with your treatments and that you will continue to remain in remission.
I will be thinking about you and sending you lots of well wishes and prayers.
Be sure to keep us posted on how everything goes.
Love & Hugs,
Nicola
|
|
|
|
|
08-05-2006, 05:23 PM
|
#8
|
|
Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
|
Maryanne, Try Miracle Flights for Kids next time. They always have funds available for commercial flights. They flew me to Seattle each time. They are very good and nice. Get on the net under Miracle flights for kids request a flight.
|
|
|
|
|
08-06-2006, 08:57 PM
|
#9
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Happy for you!
Maryann,
Your good news put a smile on my face! I am so happy that good things are happening for you....will continue to keep you in that special circle girl.....
hold on to the green!
Hugs,
Jean
|
|
|
|
|
08-07-2006, 02:55 PM
|
#10
|
|
Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
|
You are doing such a wonderful job, MaryAnn, advocating for yourself, doing everything you can to get better and working so well with your doctors -- you are such an inspiration. More power to you!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 03:37 AM.
|
Linear Mode
