HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-17-2015, 04:09 PM   #1
Mtngrl
Senior Member
 
Mtngrl's Avatar
 
Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Chemo Side Effects or Mold Allergy?

I live in a third floor apartment in an old four story building in Boston. Two weeks ago, a large pipe in the unit above me burst and water started pouring into my bedroom. It was a holiday weekend, but fortunately both I and my two roommates were home, and we sprang into action quickly.

The maintenance man came and got the water shut off, but not before my ceiling, walls, and much of the floor got soaked. There was one gushing waterfall directly under the break, and numerous other leaks. Water also got into the hall and the bathroom. My roommates' bedroom appears to have been spared. Other units were also affected. Water went all the way down to the basement.

It's Boston in the summer. It's hot and humid. And the landlord did nothing to dry out the walls or dehumidify the rooms.

I got a dose of Abraxane Monday, July 13, 9 days after the flood. Tuesday I didn't feel too bad, but Wednesday night I developed severe joint and muscle pain and intense neuropathy. I hardly got any sleep. Last night was even worse.

I called my oncologist this morning, and the NP prescribed me a painkiller. I had to go by bus to retrieve the paper scrip and take it to the pharmacy to get the prescription filled. I felt frail, exhausted, and weak. My calf muscles were giving way as I descended stairs. Then when I got home over 2 hours later I hung around in the kitchen for about another hour. When I got around to thinking I should take a pill and go lie down it dawned on me that, though I was not ALL better, my pain level was greatly diminished, as was the neuropathy.

I am extremely allergic to mold. In the past couple of years I've slept in two other buildings that I suspected had mold contamination, and, come to think of it, I had that same muscle and joint pain.

My idiot landlord is downplaying the situation, so much so that I called the City's Department of Environmental Health and had them open a case file on it. We're moving out next month, and he wants to find new tenants, so he just wants to repaint and call it done. I've gotten mold remediation done before, and that's not how it's done. First you test the mold levels. Then you have to take out all the affected plaster, insulation, etc. down to the bare studs, dry it, treat it, test again, and put up new drywall. That's not a two-day project, and it's not cheap. And it can't be done in a room full of furniture, clothes, bedding, etc.

I'm allergic to anti-fungal agents, including chlorine, and also dust. And, of course, there's lead paint. I can't be in the apartment while that's going on. And he can't just patch the holes, slap on some paint, and pretend nothing happened, though he's already done that in some of the other units.

The front part of the apartment didn't get wet, and there's good ventilation, so I'll start sleeping in the living room.

I'm happy I figured this out. I really want this Abraxane experiment to work out. And it was puzzling to have such severe side effects so fast. The last time I was on Abraxane I found it pretty easy to tolerate.

Sorry for the novella, but my point is I tend to blame everything on my cancer or my cancer treatment. If I hadn't had the Abraxane dose at the beginning of the week, I'd have realized earlier that I was reacting to the mold. I bet there's quite a colony above my ceiling and behind my walls.
__________________
Amy
_____________________________
4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
Mtngrl is offline   Reply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 04:43 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter