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Re: Ovarian cramping. On tamoxifen and Herceptin. Prone to O cysts
Hi there,
I was on tamoxifen for about 3.5 years. I started having the cramping you are describing during year 1-2. I would get ultrasounds 2-3 times a year because of them and like you the result were pesky cysts. But the last year I was on tamoxifen the cysts stopped and uterine polyps developed which lead to uncontrollable hemorrhaging. I had 4 emergency surgeries in one year to stop the bleeding. The last straw was that i developed a blood clot in my leg which they concluded that it was because of the tamoxifen. So I am no longer on it. From what I was told initially cysts are very common while on tamoxifen and 85% of the time they get reabsorbed naturally. But I wanted to let you know that for me they evolved to a more serious issue. So my advise is to keep an eye out, listen to your body. If you start bleeding and you haven't had a period, get an ultrasound asap and if possible a Sonohysterography (they inject saline into your uterus to get a clearer look).
I used to put warm water bottles on my lower belly and it really helped resolve the cysts a bit quicker. 
hope this helps
__________________
DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.
www.mychemobag.org
www.facebook.com/mychemobag
8 YEARS NED
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