HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-06-2008, 09:44 AM   #1
Emelie
Senior Member
 
Emelie's Avatar
 
Join Date: Jan 2007
Posts: 144
Glad to assist

St Louis Cancer and Breast Institute - St Louis MO
Yes to all of the questions.
Emelie is offline   Reply With Quote
Old 01-06-2008, 09:53 AM   #2
Brenda_D
Senior Member
 
Join Date: Jan 2007
Posts: 368
I'm not positive, but I think mine are at St. John's Hospital, Springfield,IL.
I can try to get them.
I have have some documentation and could try to get the rest.
Brenda_D is offline   Reply With Quote
Old 01-06-2008, 02:17 PM   #3
KellyA
Senior Member
 
KellyA's Avatar
 
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
Memorial Health University Medical Center, Savannah, Georgia.
YES!!!!! to all other questions!

Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

KellyA is offline   Reply With Quote
Old 01-06-2008, 02:52 PM   #4
Monica
Senior Member
 
Monica's Avatar
 
Join Date: Jan 2006
Location: New Jersey
Posts: 46
Great effort!
Saint Peter's University Hospital
New Brunswick, NJ
Yes to all other questions.

Best,
Monica
__________________
Monica

Dx Nov 2003 HER2+++, ER+, PR+
1.7 cm. left breast, Grade 3, Two nodes out of six, stage IIA
Mastectomy right side
Lumpectomy left side
4 A/C, 4 Taxol plus 49 weeks herceptin
Radiation on left side
No tamoxifen or other hormonal drugs
Monica is offline   Reply With Quote
Old 01-06-2008, 05:34 PM   #5
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Thumbs up Willing and able!

I have my tumor blocks that I picked up directly from the lab about one year ago. They have documentation regarding that pickup. The lab still has the slides. University of Washington may have a few slides since they did a second review. I would have to check.

YES to the other questions. My interview might take a while due to my ongoing history!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
StephN is offline   Reply With Quote
Old 01-06-2008, 07:19 PM   #6
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
Evanston/Northwestern Hospital in Evanston Illinois
Yes to all other questions.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 01-06-2008, 08:42 PM   #7
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
Innova Fairfax, VA. Yes to other questions. This is very complex. Thanks all. Bev
Bev is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:03 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter