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Old 05-01-2011, 06:11 PM   #1
Jackie07
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Chemotherapy and Alzheimer's

Just watched the Larry King Special (Yes, he 'was retired' from Larry King Live) on Alzheimer's Disease. Looked up the web and found this article by Dr. Silverman, a name many of us have learned from Idelle:

http://consults.blogs.nytimes.com/20...icit-disorder/


Then I went to their website: Your Brain after Chemo http://yourbrainafterchemo.blogspot....reast%20Cancer
and found more valuable information.

Ordered a used copy from Amazon.com and I'm looking forward to 'revamping' my cognitive ability.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

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Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 05-02-2011 at 12:07 PM..
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Old 05-12-2011, 08:08 PM   #2
Jackie07
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Re: Chemotherapy and Alzheimer's

Really enjoyed reading the book written by Idelle (Davidson) about chemobrain. Your Brain after Chemo: a practical guide to lifting the fog and getting back your focus is comprehensive and easy to read. I like the gentle, smooth way Idelle presents the hard facts and the useful strategies.

Having had two full doses of chemo in 2003 and 2007, I can attest that 'chemobrain' is a 'fact'. The neuropsychologist who tested me in 2008 and 2009 listed my chemotherapy as one of the factors (besides my two brain surgeries in 1990 and 2001)of my 'cognitive decline'.

Fortunately I've been pretty much following the strategies suggested in the book. A lot of the things mentioned in the book have been discussed on the Her2support Board. However, it is really nice to have something easy to read on hand. Had a chuckle at the guideline quoted from American Journal of Medicine (by Dr. Joe Alpert) which put 'inherit good genes' at the top of the list. And how true is the last step of the '9 daily steps you can start today': "Avoid Doctors, Drugs, and Hospitals!" It does come with a qualification: "If you urgently need medical care or if you are in treatment for cancer, the advice does not apply to you."

There is one correction needed on the formula of the pulse rate (page 165) to make it mathematically accurate. Though the example clarifies how the formula works, there should be parentheses before the multiplication function:

" (220 - your age) x .85

(For example, for a sixty-year-old, 85 percent
of 160 equals 136)"

Order a copy 'now' before it 'slips your mind'.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 05-25-2011 at 08:34 AM..
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Old 05-23-2011, 08:48 PM   #3
imdavidson
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Re: Chemotherapy and Alzheimer's

Hi Jackie,

Thanks so much for your kind words about our book, "Your Brain After Chemo." We've been very fortunate as our book has been well reviewed and the positive feedback I've received from readers has made me happier than I can tell you.

Now, about your catching that "goof" with the missing parentheses, I'll be sure to let the publisher know to fix it before the next printing. I never noticed it (but in my own defense, I'm terrible at math (-.

What I did notice though from your post is your impressive attention to detail in noticing the missing parentheses -- a decidedly unchemo-brainish thing to do!

Thanks again, Jackie. I appreciate all that you do on this forum. I've benefited a lot from your many helpful posts.
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Co-author (with Dr. Dan Silverman at UCLA) of "Your Brain After Chemo: A Practical Guide to Lifting the Fog and Getting Back Your Focus" (Da Capo Lifelong Books, 2009). Amazon. www.YourBrainAfterChemo.com.

ER/PR negative/HER-2 positive
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Old 05-24-2011, 06:31 PM   #4
Laurel
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Re: Chemotherapy and Alzheimer's

Ya know, Jackie, I must agree with Idelle. You ARE as sharp as the proverbial tack!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
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I think I just might hang around awhile....

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Old 05-28-2011, 01:17 AM   #5
Jackie07
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Re: Chemotherapy and Alzheimer's

Chemotherapy and cognitive function:

http://www.ncbi.nlm.nih.gov/pubmed/21600374
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 06-01-2011, 12:26 PM   #6
imdavidson
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Re: Chemotherapy and Alzheimer's

Jackie, thank you for this link. I'm going to start a new thread to discuss it. Look for: "State of the Research on Chemo Brain."

Idelle
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Idelle Davidson
Co-author (with Dr. Dan Silverman at UCLA) of "Your Brain After Chemo: A Practical Guide to Lifting the Fog and Getting Back Your Focus" (Da Capo Lifelong Books, 2009). Amazon. www.YourBrainAfterChemo.com.

ER/PR negative/HER-2 positive
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