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Old 12-04-2011, 05:20 PM   #1
kiwigirl
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Location: Matakana which is one hour north of Auckland, New Zealand.
Posts: 89
Talking Christmas is early for me....Update from Jacqui

Hi All

I thought i would update you all on my progress. In August I was taking my family on a holiday to Hawaii I had a scan to get a clearance to fly. The scan was not good. Two new brain mets and the others had started to grow, I also had a substantial amount of edema.

I started Tykerb and xeloda which is not funded here and cost $2300 every two weeks but i had to try as i was running out of options.

Anyway last week i had an MRI they phoned my onc straight away and said what have you been giving this women. A large number of mest GONE GONE GONE, no new ones and the three remain mets have shrunk by 50% they are now 17mm , 6mm,and 8mm. WOW!!!!!

My edema has almost gone to. I had been feeling much better and now i know why. I've had all the side effects from my meds but i don't care with such great results i just have to look after my self.

My Onc seems to think the WBR has weakened the blood brain barrier allowing med to get through.

So with my fantastic news i feel like its merry Xmas to me.There is always hope and I'm striving to become NED!

Thank you all for your support you have given me with great advice.

Lots of Love to All
And a very Merry Christmas
__________________
Oct 2009 Masectomy 6 cm Tumor . Sentinal node biopsy , Node Positive . Her2 + er/pr -.
Nov 2009 X3 Taxane and Herceptin, X3 FEC
March 2010 25 Rads
March 2010 continued on Herception untill 16 Dec 2010
May 2010 Ultra Sound .... ALL CLEAR... NED
August 2010 started vaccine trial University of Washington
7th Dec 2010 finished vaccine trial
20th Dec 2010 Port removed
3rd Feb no longer ned brain mets
23r Feb start VMAT radiation
August 2011 two new mets to brain and others starting to grow again !!!!
August start tykerb and xeloda
Dec 1 MRI all small brain mets gone. Largest shrunk by 50% only three small ones to go 17mm,8mm,6mm. Mets on there way out. Yeah
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Old 12-04-2011, 07:39 PM   #2
Laurel
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Location: Hershey, PA. Live The Sweet Life!
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Re: Christmas is early for me....Update from Jacqui

That is such wonderful news. Merry Christmas indeed!
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
9 Years NED
I think I just might hang around awhile....

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Old 12-04-2011, 08:34 PM   #3
ElaineM
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Wink Re: Christmas is early for me....Update from Jacqui

You got the best Christmas present ever. Great news about a reduction in cancer is the best present.
Mele Kalikimaka from me in Hawaii.
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Peace,
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 12-05-2011, 03:30 AM   #4
Delaney
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Re: Christmas is early for me....Update from Jacqui

Am so happy for you and you look great!!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 12-05-2011, 07:57 AM   #5
sandra digilio
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Re: Christmas is early for me....Update from Jacqui

I'm glad to hear the good news for you. I hope you continue to do well and great things happen to you.
I have metastatic breast cancer and it has recently spread to my rib, back and chest bone. I feel like I've been overwelmed lately and look to this website for support and good news stories.
HAPPY HOLIDAYS!
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Old 12-05-2011, 09:00 AM   #6
NEDenise
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Location: Philly Suburbs
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Re: Christmas is early for me....Update from Jacqui

Congratulations Kiwigirl! And a very Merry Christmas to you, too!
BTW-I agree, you do look beautiful!

Welcome, Sandra! Sorry you have to be here, but I'm sure you'll find the support you are looking for! I certainly have!

Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. Cavett Robert
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Old 12-05-2011, 09:42 AM   #7
bejuce
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Re: Christmas is early for me....Update from Jacqui

Wonderful news, woohoo!!! Just in time for the holidays!!! So happy for you!
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 12-05-2011, 10:19 AM   #8
Ellie F
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Re: Christmas is early for me....Update from Jacqui

Wonderful to hear this news before Christmas.

Ellie
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Old 12-05-2011, 02:54 PM   #9
JennyB
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Location: Port Hedland, Australia
Posts: 381
Re: Christmas is early for me....Update from Jacqui

So happy for you your delight is palpable as I'm sure is your family's!
Merry Christmas Mate
Jenny xx
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Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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