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Old 09-08-2006, 06:53 PM   #1
Mary Jo
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So So Sorry

Oh Dear Tracy,

Words can not express the sadness I and the others feel for your loss. Such a sad, sad day for you.

May God hold you close and give you His Peace,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 09-08-2006, 07:06 PM   #2
lu ann
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Dear Tracy,

We are all very sorry for your loss. We all just need to tell our loved ones that we love them because we just don't know what the future holds. I pray that you will find comfort in this time of great loss. I can't even imagine.

Lu Ann
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Old 09-08-2006, 09:22 PM   #3
mslinda
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Tracy

So sorry to hear of your great loss. I can't imagine the loss of my soul mate. My prayers are with you and your family. May God bless and keep you always.

Linda
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Old 09-08-2006, 10:11 PM   #4
michele u
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Tracy,

This had to be such a shock. I know when we are dx with cancer we think of ourselves passing but not our family first. I'm so sorry. You are really going to have to hold strong to your faith to get you through this one. Lean hard on God now, he is there.
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Old 09-08-2006, 07:29 PM   #5
Cathya
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Tracy;

My sincere sympathies to you and your family. I will be praying for all of you. I am so very sorry to hear this news.

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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Old 09-08-2006, 07:52 PM   #6
StephN
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Unhappy Sincere sympathy

Dear Tracy -
Have not seen you here lately, so I hope you were having a great summer with your family and feeling well.
This disease teaches us to make the most of each and every day, and I think you are one who did that.

Of course you are numb, no one expects such a thing. Be angry, sad and whatever else you feel and come here and vent.
This is a stressor of all stressors.

It will be hard to find comfort for quite a while, but I pray peace will come.
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 09-08-2006, 08:00 PM   #7
sassy
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In prayer

Tracy,

Keeping you and your family in my thoughts and prayers. May God hold you in the palm of his hand...
________
WEB SHOWS

Last edited by sassy; 08-22-2011 at 08:53 AM..
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Old 09-08-2006, 08:01 PM   #8
Ceesun
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My deepest sympathies to you and yours Ceesun
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Old 09-08-2006, 08:13 PM   #9
Bev
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So vey sorry. No way to make it right. We just go on. Keep in touch. Talking about it will at least keep you from going crazy. Argh! God is love. BB
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Old 09-08-2006, 08:59 PM   #10
Vanessa
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My deepest condolences to you and your family. I will keep you all in my thoughts and prayers.
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Old 09-08-2006, 09:10 PM   #11
Lolly
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Tracy, I am so sorry. This seems inadequate, but all I can do is say I will keep you and your family in my thoughts and prayers. We will be here for you when you need a "shoulder".

<3 Lolly
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Old 09-09-2006, 05:53 AM   #12
MJo
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I am praying for you and your family. I am so sorry. Mary Jo
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Old 09-09-2006, 08:25 AM   #13
Joy
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Oh, Tracy

I am SO sorry Tracy. There are no words. Be numb and then angry and sad and feel it all and let others hold you. And know that we are here.
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joy

dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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Old 09-09-2006, 08:32 AM   #14
Montana
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Any words are inadequate at this time but I'm thinking about you.
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Old 09-09-2006, 08:09 PM   #15
dede10
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Prayers for you & your family
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3/2003-Dx'd Stage 4 Her 2+++

"Life is not measured by the number of breaths we take, but by the moments that take our breath away."

Dum spiro spero
(Latin: while I breathe I hope)
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Old 09-09-2006, 08:59 PM   #16
Kaye
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{{{Tracy}}} Prayers, condolences, and {{{hugs}}} at this very sad and difficult time. I am so very sorry...may he rest in peace...
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Old 09-09-2006, 09:36 PM   #17
chrisy
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Noooooooooo

Tracy, how devastating...I have no words. Many prayers for you and your family.
Love,
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-10-2006, 02:01 PM   #18
KathyH
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Lots of love to you

Hi Tracy!

I know that this disease seems like it should be enough sorrow for a lifetime! I am so sorry that you have had such a terrible blow to add to the difficulty you already have. I am praying that God will wrap you in a blanket of his love. If there is anything we can do, just send a note.

Love to you, Kathy
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Old 09-10-2006, 03:49 PM   #19
tricia keegan
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Unhappy So sorry

Tracy Words just cannot express how deeply I feel for you right now.I am truely so very sorry you have to face this and will be praying for you.

Tricia
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Old 09-10-2006, 09:32 PM   #20
sherri
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I'm so sorry. Please let us know if anything we can do for you?

Big hug to you
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