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02-13-2008, 05:07 AM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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More news on Carol H-
Hello again Everyone,
Since I last posted Carol had to have surgery to insert a couple of metal rods in her femur and spine area as the cancer had degenerated the bone so much, all treatments had been put on hold while she healed. This concerned Carol greatly as the brain tumour continue's to grow and she finds herself becoming more confused daily as a result while still battling the pain from the bone cancer.
This morning I had a call to say she's been moved finally to another hospital for WBR and I can visit her tomorrow 
The first hospital she had been in for surgery allowed no visits (even family) as they had a severe flu outbreak going on, so poor Carol has been left on her own practically since Christmas. I just spoke with her and she hopes to be home next week, they've converted a room down stair's for her at home as she's in a wheelchair at present. I'm sure I'll get lots more news from her tomorrow but she still has the same determination and courage to fight this that she had when first dx. A very couragous lady!
She always asks about her friends here and as I've received a couple of pm's asking how she is I thought it was time for an update and a reminder to please keep her in your prayer's. Thanks to all.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-13-2008, 05:13 AM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Tricia, thanks ever so much for updating us on Carol. What a battle she has been fighting! Please give hugs and love from me and tell her I think that she is wonderful! And love to you for putting your love into action. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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02-13-2008, 05:17 AM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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We'll be praying for her. Thanks.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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02-13-2008, 09:36 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Tricia;
All my best wishes to Carol. It is wonderful of you to keep us informed and I do hope she gets some better news soon.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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02-13-2008, 02:26 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Tricia,
Thank you for keeping us posted on Carol's progress. Carol is one heck of a warrior. She's to be admired for her determination. I will keep her in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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02-13-2008, 03:18 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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You are both in my thoughts and prayers, Love, Bill
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02-13-2008, 03:27 PM
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#7
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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More prayers coming to you and Carole H.!!!!!
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02-13-2008, 05:41 PM
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#8
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Tricia,
Thank you for posting the update. Carol sounds like an amazing person and it is hard to believe all that she is going through. I will say extra prayers for her and her family.
Love, Hope, and Peace,
Carolyn
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02-15-2008, 09:42 AM
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#9
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Senior Member
Join Date: Jan 2007
Posts: 144
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Prayers and good thoughts
Thanks so much for the update. I have been thinking about her and wondering how she was doing. Please let her know that we are keeping her in our daily thoughts and prayers.
Emelie
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02-20-2008, 01:45 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Vancouver Canada
Posts: 72
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Thanks Tricia
for the update on Carol. I wish I could be there to give her a huge gentle hug, she's been through so much. The pain of being isolated while you are so very ill is unbearable, for her and her loved ones. My family went through this during the SARS epidemic in Toronto with my mother critically ill in hospital. Without family and friends around, where do you find the strength to fight, yet she is still fighting for her children and her family and they all deserve for her to get better! I hope being out of isolation and surrounded by love will help to make the WBR a success and she will be blessed with a miracle. My heart just aches for her, her story has really touched me. I want her to get better! Please give her our love and let her know we care. And you are a sweetheart to be there for her Tricia. Thanks for keeping us posted.
Love and hope,
Jade
__________________
Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
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02-20-2008, 03:16 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Tricia-
Thank you so much for the update- please let CarolH know she being thought of...
Maria
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