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Old 03-19-2008, 11:14 AM   #1
Believe51
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Thumbs up ~Today Is Fifteen Years With Mighty Oak!!!

What a happy day here in my heart, today marks 15 years from the day we met. Another milestone. The morning was a bit emotional for me....mind wanted to rebel and scream that our story is not done yet!!! I felt kind of sad until I pushed away those feelings of being robbed again from cancer. Just allowing those thoughts to flourish lets cancer steal more from us. After all, Mighty Oak stands tall besides me; he is still here and we are still composing our story.

Imagine that he was my first and only blind date AND I did not even want to go. Sometimes when I am sad I think back to that day and how I almost did not get the gift God had created just for me. I went against one of my feelings and found all of the man that Daddy told me I deserved.

And once more I must say that if Ed was going to get sick I am so thankful that he was sent to me!! My life is truely blessed having him in my world and he is everything I thought true love should be.

Thank you all for listening to me today, I needed to share some of the finest feelings I have ever experienced. He is my life, my Warrior, my Angel.

Ed......"You Are My Sunshine", need I say more??

Love You All>>Marie G
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 03-19-2008, 11:22 AM   #2
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Marie G,

Thank you for sharing your "loving" feelings. My husband and I are going to celebrate our 20th anniversary this summer. And my oh my, did time fly fast! "...in health, in sickness..."
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Old 03-19-2008, 11:47 AM   #3
tousled1
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Congratulations Marie! I know that this is a very special day for both you and Ed - fifteeen years! But not too worry I'm confident that you will have many more years together to celebrate. Ed is a warrior -- he's proved it time and time again. My love to both of you.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 03-19-2008, 11:58 AM   #4
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Happy Anniversary Marie and Ed!

You were meant to find each other. He sounds like a fine man, and a very lucky one to have you in his life. We've never met but I know you are a truly amazing woman whose love knows no bounds. With you by Ed's side, I know he can beat this, against all odds.
Love,
Jade
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Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
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Old 03-19-2008, 12:11 PM   #5
Believe51
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Wink Jackie07

I do not know where the time went but I asked God if he gives us more we will remember every second!! LOL. The 'In sickness' and 'In health' reminds me of a poem I wrote for his one year cancerversary.......if interested search for 'Husband's One Year cancerversary Poem'. Those words are sacred to us>>Love>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 03-19-2008, 02:24 PM   #6
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Happy Anniversary Ed and Marie!! I am so happy that you found each other and that you decided to go out on that blind date!! You were meant to be together!!

Hugs,
Lexi
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Old 03-19-2008, 02:27 PM   #7
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Congratulations on fifteen years. I wish you many, many more. I think you are both very fortunate to have found each other.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 03-19-2008, 02:29 PM   #8
Jeanette
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Wink

Happy anniversary Ed and Marie. My husband and I just celebrated our 46th anniversary. Seems just like yesterday that we met at the local dance hall. Blessings and hugs, Jeanette
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Old 03-19-2008, 04:03 PM   #9
IRENE FROM TAMPA
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Smile Happy 15th Marie and Ed

How lucky both of you are to have found each other. That kind of love comes once in a lifetime and you are both so fortunate to have it in yours.

One of my daughters has a sign over her door that say's

AND THEY LIVED HAPPILY EVER AFTER......

they are also soul mates as you and Ed

congrats again
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 03-19-2008, 04:49 PM   #10
Liz J.
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Smile Happy Anniversary

Dear Marie & Ed,

Happy 15th anniversary. Congrats to you and many, many more. Thank you for sharing this with us.

Sincerely,

Liz J.
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Old 03-19-2008, 05:37 PM   #11
Mary Jo
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Happy Anniversary Ed and Marie.......I'm thanking God for your time together - for the love you share and for the gift each of you are to us here on the board.

Love to you both...............

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 03-19-2008, 06:15 PM   #12
Jean
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Cool

Hi Marie,
May have been a blind date, but you sure could see he was the sweetie for you....you are a wise woman my dear.

Enjoy your anniversary with joy and I know you will be blessed with more years.

Sending a huge hug to both of you.
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
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TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
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Old 03-19-2008, 06:27 PM   #13
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Marie
Congratulations to you both....love can be the best thing ever when 2 people are truly soulmates, which you and Ed have shown to be in a grand way.....my Dad always told me you have to kiss alot of frogs before you meet your prince......you were so lucky. May you and Ed be blessed with many many more years of loving each other....you both deserve it!
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is fighting some kind of battle."



Hugs & Blessings
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-19-2008, 06:45 PM   #14
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"And the greatest of these is LOVE".

Thanks for sharing your story of love with us.

Congratulations!
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dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 03-19-2008, 08:01 PM   #15
Joan M
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Marie, You and Ed are the best! Here's to many more years together. Cheers, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 03-20-2008, 10:12 AM   #16
kimber
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Happy anniversary Ed and Marie. God truly does work in mysterious ways! I was also set up on a blind date with my husband. He has not had it easy so to speak being with me. First thyroid cancer, then breast cancer. However, you listen to him and he would not trade me for the world! (Why - I can't figure!) I guess my point is no one knows what is in store for us. Health wise, love wise, money wise, etc., We just need to have faith that God is there to help us through and with whatever it is that comes our way.

God made sure to put you in Ed's life to love him the way he deserves to be loved. He put YOU in all of our lives to help us find the courage and strength to get through our trying and sometimes impossible times and situations. It is because of your strength and conviction Marie that a lot of us can muster up ours.

Heres to you and Ed - Cheers my friend. May you have many great quality of life years ahead!!

Love - kim
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dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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Old 03-20-2008, 11:14 AM   #17
Vi Schorpp
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Marie

Happy anniversary to you and Ed. My husband and I were blind dates also (his cousin married to my cousin) and were married one month shy of 32 years. You and Ed were meant to be together and I'm glad you found each other!
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Old 03-20-2008, 12:15 PM   #18
MJo
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I think that to love and to be loved is a wonderful thing. Happy Anniversary.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 03-20-2008, 01:33 PM   #19
tricia keegan
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Smile Happy Anniversary!

Marie and Ed and am sure you'll have many more together to celebrate. Talking of celebrations I hope you have something nice planned for both of you!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 03-20-2008, 01:37 PM   #20
Believe51
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Posts: 2,999
Wink Thanks once again for being YOU

"These friends are unbelieveable"....straight from Ed's mouth. We read your posts before we started our evening. Of course our night started with food, glorious food. I was a little scared though because after we ordered our dinner, Ed had to go to the car for air. He had the worst case of 'wanting to pass out' and I asked him again to let me know when this happens so I could atleast help him to the ground.

We ate and we ate some more. It was raining here last night and the long ride we took was even better because of it. The fog hung low when we settled at the ocean. Although it was our special evening we spent a part of it discussing y'all (Bill are you listening??). We laughed, we cried, we made plans, yes plans for the future.

The next celebration will hopefully be 'dancing with NED'. I once asked him where he wanted to go when we got the other half of our miracle.....anywhere in the world, his reply: "Iggy's Doughboys on the water, Marie. As long as I do not have cancer and you are by my side, I do not care." So when we get to that point I am planning on a celebration for all whom love Ed, at Iggy's (famous stomping grounds around this area). And yes fine friends, there will be plenty of jasmine and honeysuckle.>>Believe51

Thanks for loving us
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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