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02-20-2008, 08:13 PM
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#1
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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Packed and ready to meet up with Audrey!
I'm leaving in the am for Jacksonville FLorida for the Young Survivors Coalition confrence. I'm meeting up with Audrey from Ohio. We have not seen each other for over a year!! I can't tell you how this makes me feel!! When i met her for the first time 5 years ago, I finally felt a part of something. We met on this board and she will be my best friend for life. I will post pictures when i come back. I'm sure i will also learn some great stuff to share with you all. (Hope my airplane doesn't get hit by the falling satellite!) Ha Ha
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
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02-20-2008, 10:05 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Hey Michelle,
Have a wonderful time at the conference. I have yet to make one, but would like to attend. I need to get over the fear of flying by myself!
Hugs,
Lexi
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02-20-2008, 11:40 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Vancouver Canada
Posts: 72
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Michele
I could feel your joy jumping off the page! I think it is so cool that you met your bestest friend on this board! Your post inspired me to say 'thank you' to Christine and Joe, something I've been meaning to do for a while.
I hope you and Audrey have way too much fun!!
All the best,
Jade
__________________
Dx Nov.04 - Stage 1, Grade 3, widespread high grade DCIS, Paget's disease of nipple, 8mm tumor invasive DC (ductal carcinoma), ER/PR-, HER2+++
Nov.04 - left mast., clear margins, 6 of 6 nodes clear
Feb.05 - began EC chemo, 4 rounds (every 3 weeks)
Aug.05 - began Herceptin every 3 weeks for 1 year
Aug.06 - ended treatment
NED
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02-20-2008, 11:51 PM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 232
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Michelle,
Have a great time. I can't wait to see the pictures.
Karen
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02-21-2008, 10:58 AM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Michele -
I know you will have the BEST time in Florida. You can use the change in weather, huh?!?! Give Audrey a big hug for me.
Did you see the eclipse of the moon last night. It was PERFECT here.
And they did manage to get the falling staillite shot down so no worries about that one. It was supposed to fall over OUR state anyway!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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02-21-2008, 01:30 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Hey Darling...
Satellite is down. All clear. Now all you have to do is enjoy yourselves. Cannot wait to hear about your adventure when you get back. Your story of friendship is beautiful.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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02-21-2008, 05:36 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I'm excited for you Michele and Audrey. How cool! I know I have "mentored" a few women and we have become close. One lives in CA and I will be meeting her this Fall. We've been communicating for almost 2 years now and I feel like we've known each other forever. I met another woman 2 weeks ago ( a woman my hospital asked me if I would contact) She sings in a contemporary Christian band (my absolute favorite kind of music) and we hit it off right from the start. She had her mastectomy today (negative lymph nodes PRAISE THE LORD) and we plan on meeting in the next few months. She lives about 2 1/2 hours from me.
So, I understand that feeling Michele. You know................... breast cancer can be nasty I KNOW........but, I'll tell you what..........I've met some of the most awesome people since my journey began (and that includes this group as well) and I wouldn't trade that for anything.
"All things truly do work for good....................."
Mary Jo
P.S. Forgive my rambling........geez, I wanted to tell you how happy I was for you and ended up sharing my life story - haha  OOPS
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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