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Old 06-18-2018, 01:13 PM   #21
janieR
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Re: Finally joining the thirteen year club!

Hi Tricia.

So very pleased to read this. So happy for you.


Janie
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Old 06-20-2018, 04:25 PM   #22
lkc Gumby
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Re: Finally joining the thirteen year club!

Congratulations and welcome to the 13 year club!
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 06-20-2018, 10:44 PM   #23
sarah
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Re: Finally joining the thirteen year club!

Very happy for you, Tricia, and many more to come!
health and happiness
sarah
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Old 06-21-2018, 02:54 PM   #24
tricia keegan
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Re: Finally joining the thirteen year club!

Thank you Janie, Linda and Sarah!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-22-2018, 07:15 PM   #25
Mary Jo
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Re: Finally joining the thirteen year club!

Thankful for your wonderful news.
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

12 years NED

<>< Romans 8:28
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Old 06-25-2018, 02:55 PM   #26
tricia keegan
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Re: Finally joining the thirteen year club!

Thank you Mary Jo, so pleased for yours too!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-26-2018, 05:55 AM   #27
Laurel
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Location: Hershey, PA. Live The Sweet Life!
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Re: Finally joining the thirteen year club!

Tricia,


Congratulations on the great anniversary! Every year out is encouraging to us, isn't it? Do you remember that we had twin kitties (black and white tuxedo)? My beloved Whiskers passed away in 2016 and I was truly heart broken. He was such a wonderful kitty. In January I decided I needed a kitty cat in my life again and was lucky to find a gorgeous British Longhair in need of a home. He was born in Russia, so what an odyssey that he would find his way to me! He is the purrfect pussy for us! God knew, I suppose! I'd insert a photo, but I do not know how. Maybe I will change out the Molly, The Survivor, photo on my signature provided I can figure out how to do THAT!


A friend's daughter was just over in Killarney competing at the World Irish Dance Competition. I enjoy going out to see the girls perform--those super fast feet! I may attend next year's competition.


Congrats again!
Laurel




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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

10 Years NED
I think I just might hang around awhile....

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Old 06-26-2018, 02:46 PM   #28
tricia keegan
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Re: Finally joining the thirteen year club!

Thank you Laurel, I remember when you lost Whiskers and I'm so pleased to know you have another furry friend in your life. I used to have six (and a long suffering husband lol) but we're down to three now as lost three to old age and illness. Killarney is a lovely part of the world, if you get to Ireland do let me know though as I'd love to meet up! If you're on Facebook I hope you'll look me up there too, I'm listed under my name here and friends with a few ladies from the her2 site.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 06-26-2018, 06:28 PM   #29
StephN
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Wink Re: Finally joining the thirteen year club!

Thank you for the good news. Like Catherine said, there are many newly diagnosed who are dazed and confused! Women like you, who stay active on a few fronts have done such a world of good for so many people.

Not to mention your work on behalf of animals!
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 06-27-2018, 01:43 PM   #30
tricia keegan
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Re: Finally joining the thirteen year club!

Thank you Steph, and I must say I enjoyed seeing your recent photo's on your trip to France, very beautiful. You also give so much hope and encouragement to other newbie's coming here which is a credit to you.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-21-2018, 07:00 AM   #31
CutiePie
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Re: Finally joining the thirteen year club!

Congrats to you! I'm also at the 13 year mark.
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Dx: 2005 (pre-men, age 46) IDC Stage 1, no nodes
ER/PR -, Her2 +++
Lumpectomy with sential nodes negative
Chemo ACT, Rads, Herceptin for 10 months
Genetic testing 2008 BRACA 2 positive
Oopthectomy in 2008
Bilateral Mastectomy 2010, Reconstruction with expanders then silicone implants.
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Old 07-21-2018, 03:13 PM   #32
tricia keegan
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Re: Finally joining the thirteen year club!

Thanks and congrats to you also Cutiepie!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-27-2018, 02:22 PM   #33
Midwest Alice
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Posts: 455
Re: Finally joining the thirteen year club!

Congratulations Tricia! 13 years with more to come
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Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 07-30-2018, 12:51 PM   #34
tricia keegan
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Re: Finally joining the thirteen year club!

Thank you Alice!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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