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11-26-2007, 08:27 PM
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#21
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Senior Member
Join Date: Sep 2005
Posts: 232
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I am so sorry to hear your news. Your sister had a beautiful spirit.
Sending love, strength and healing prayers.
Karen
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11-26-2007, 09:07 PM
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#22
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Senior Member
Join Date: Oct 2005
Posts: 215
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Debbie
My sincere condolences on the loss of your sister. she was a true warrior. Another angel watching over us. She is now in the arms of the Lord and at peace. Blessings to you and Nicola's husband and family, Jeanette
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11-26-2007, 09:23 PM
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#23
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Debbie
I am so sorry to read about your loss. Words escape me. I can't imagine losing my sister. May our loving Father hold you in His comforting arms through this.
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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11-26-2007, 10:03 PM
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#24
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi Debbie,
I'm so sorry as well.
I guess I didn't know Nikki was having a setback. I wish I did.
You are a great sister. I seem to remember our chat days where both of you came on.
Take care, Bev
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11-26-2007, 10:40 PM
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#25
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Debbie,
I'm so very sorry to hear this. Your sister was a strong presence here for so long, and we will miss her much. Thank you for letting us know she's now at peace. I will pray for your and your family.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-27-2007, 03:35 AM
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#26
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Sad news indeed
My deepest condolence's to you all at this sad time 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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11-27-2007, 06:28 AM
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#27
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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This is such sad news. I wish I could have known her in person. She will be missed.
maria
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11-27-2007, 06:33 AM
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#28
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Guest
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Debbie,
I'm so sorry for your loss. My sympathies to you and your family.
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11-27-2007, 07:51 AM
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#29
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Senior Member
Join Date: Oct 2005
Posts: 823
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Debbie
Debbie I am so very, very sorry to hear of sweet Nikki's passing.
Please know you and her family are in my prayers during this most difficult time.
I know God will wrap his arms around all of you to help bring comfort to you.
I am so very sorry.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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11-27-2007, 08:45 AM
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#30
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Debbie,
my deepest sympathy. I send you a big hug. your sister was fortunate to have you to help her through her difficult journey.
hugs and love
sarah
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11-27-2007, 09:56 AM
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#31
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Morning Debbie
I am writing in PINK today to honor my Angel friend, she loved to write her posts in pink and that was her signature. When you thought of Nikki the pink post and her wonderful spirit came to mind, what a spectacular friend she was to all the lives she touched!! Wanted to express my deepest sympathies for your sister and our Dearly loved Warrior Nicola (Vamoonrise). She certainly had a sense of humor that she kept vibrant through all of the journey she was on, I especially loved how she would thrive on teasing me constantly. I have been praying for her since the first day I met her here at Her2support and now those prayers will be extended to all that loved her. She surely loved and supported us all here who needed her help on our own journies. Unselfishly she provided us the strength and hope to struggle with our own fights. She is yet another Special Angel looking down upon us and STILL providing us that same strength and hope.
Dear Nicola, I thank you for all of the love, support and understanding. You have made me a better caregiver for my husband, you have empowered me to help him fight this battle. Forever I shall carry a piece of you around in my heart and when needed I shall pull out one of your smiles and gather the strength to trudge forward. Thank you for teaching us how to be that Angel Warrior Nicola, your friendship will remain alive deep in my soul.
We Shall Meet Again In Heaven>>Believe51
PS: One thing she would tease me about was the competition she had with her and myself writing LONG posts!!! So Nicola.....this one's for you Darling!! Love You forever!!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-27-2007, 03:59 PM
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#32
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Debbie,
I am truly sorry to hear of your sister Nikki's passing. Please accept my sincerest condolences and prayers for healing to you and your family.
Kim
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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11-27-2007, 05:15 PM
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#33
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Nothing is so heart breaking as the loss of a warriors sister. Thank you so much for letting us know. We know you blessed her final days. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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11-27-2007, 07:24 PM
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#34
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Senior Member
Join Date: Dec 2005
Posts: 274
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Dear Debbie,
My sincere condolences to you and your family on the loss of your sister. My prayers and thoughts go out to you.
Sincerely,
Liz J.
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11-27-2007, 09:16 PM
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#35
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Our prayers go out for Nicola and her family.
Hugs
Christine and Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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11-27-2007, 09:49 PM
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#36
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Senior Member
Join Date: Nov 2006
Location: Bedford, Virginia
Posts: 134
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Debbie,
I cannot begin to tell you how I sorry I am for you, Billy and your wonderful family. Nicola and I both shared that we were "Virginians," however, several hundreds of miles separated us. A couple of months ago, I had some odd symptons, and Nicola candidly shared with me her experiences.
Several posts went a few weeks back inquiring if any of us had heard from Nicola. I emailed Nicola at her AOL address, and she responded. She told me that the family was planning a celebration of her life around the Thanksgiving holidays in NC. I am saddened that she died prematurely of that event. I know, however, that you and your family are still celebrating her beautiful life in the hereafter and Nicola is beaming as usual. I cannot change the past, but I know wish I had taken the time to make that trip to Richmond.
This is very tough for me as she is the first person that I actually had a connection with on this site that I have lost. I feel very priviledged to have gotten to know a little about her. She was such a joy to know. She is person who we would all like to emulate.
God bless, and thank you for sharing the news of her loss.
Louise
__________________
- Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
- Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
- AC/Cytoxin combo - 4 treatments (dose dense);
- Taxol/Herceptin combo- 12 weekly treatments;
- Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
- BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
- MRI, 08/02/07 - NED
- 1 year Anniversary - 09/07; completed Herceptin 11/07.
- Mammo 02/14/08 - NED; MRI - 08/2008 - NED
- 2 year Anniversary - 09/08
- Mammo 02/09 - NED; MRI - 08/09 - NED
- 3rd year Anniversary - 09/09
- 5th Annivery - 09/2011 - NED
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11-28-2007, 05:32 AM
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#37
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Virginia gal
Deep sorrow for your loss, Debbie. You and your family have some wonderful memories of Nicola and you can continue to celebrate her life. She also reached out to me....another Virginia gal...... with advise when I thought I was going to have to transfer my care to Richmond. We exchanged several private e mails that gave me support. Prayers for all her family. Hugs, Bonnie
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11-28-2007, 07:35 AM
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#38
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Senior Member
Join Date: Apr 2006
Posts: 131
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sad news
please accept my sincere thoughts and prayers on the loss of your sister.. she will be missed greatly..
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11-28-2007, 03:46 PM
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#39
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Debbie,
Please accept my sincere sympathy in the passing of your sister Nicola. She was such an inspiration to so many here. No matter what she was going through she still managed to maintain her sense of humor and offer hope and encouragement to so many. Just like so many other women here who participate in clinical trals shows how unselfish she was. Her participation and that of others here in clinical trails lead the way for many of us. Nicola was a very brave warrior during her fight. Now she is no longer in pain and is at peace. My heart is saddened. I will keep you and Nicola's family in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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