? about Tykerb Duration - Page 2

ElaineM · 11-06-2011, 08:50 PM

I think calling the drug company to find out why it should be taken on an empty stomach is a great idea. I also think adjusting the dose temporarily if you have too many side effects is a good idea as long as the medicine seems to be effective. The pills will also last a bit longer that way. We know what our bodies can tolerate best.
There was a post here about taking Tykerb with food sometime ago. Maybe you could do a search (see above) on Tykerb and see if it comes up.
Did you know patients are not supposed to eat grapefuit while taking Tykerb? I think that has something to do with pathways in the body. There must be something in grapefruit that interacts with some medicines. I found that information when I did a search on my blood pressure medicine on www. drugs.com. The chemical feeling could also be some kind of interaction between the Tykerb and whatever other medicines you may be taking or food you may be eating. Everyone's body is different. You can check all your medicines for interactions at www. drugs.com. I often find things listed that my doctors don't know about. If that happens I ask my doctors and/or pharmacists to check for interactions on whatever software they have for that purpose.
Good luck. Keep up the great work.

Barbara H. · 11-10-2011, 03:43 PM

I had to go off TDM-1 after two years because I developed lung inflammation. I had a biopsy and was able to continue for another year until the inflammation begin to progress. Once TDM-1 begins available it could still be an option for me, but I would need careful monitoring. I was NED when I switched to Tykerb and Herceptin.
Best,
Barbara

pibikay · 11-17-2011, 06:28 AM

Hema has been asked to take Tykerb immediately after food.Its side effects are less than that od Xeloda.But for the first couple of months she was feeling very tired

annmask · 11-17-2011, 08:47 AM

Once TDM-1 is made available, you could try a lower dose, or a diferent scheule. I am so frustrated by how long this drug is taking to reach us! May you continue to be ned until there is a real cure! Also, if anyone is near Boston, we are planning to have a rally on December 6, mid=day, to educate the public, get more signatures on the petition, and make a splash about this travesty. Four years in trials, great results consistently, and we still can't get it outside of trials with all kinds of strict dosing rules (among other problems!) So that is m rant. If anyone missed signing the petition, I will seek it out and post it again. I think you could find it searching TDM-1 on this site. We can thank our tireless leader Phil for this momentum!